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Ovarian Cancer Community

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Possible Misdiagnosis?

by RacherBunny, Apr 08, 2008 09:33PM
my name is rachel. i'm 20 years old and i recently asked the sonographer at my work to do a quick ultrasound on my ovaries last week. i was diagnosed with pcos almost 3 years ago and i wanted to see "how the cysts were" (how many, how big, that sorta stuff) before i go to my gyn appointment the next day.

when she did the ultrasound she said there was no "string of pearls" (pcos type cysts), but there was a "light spot" on my left ovary. she said not to worry too much about it, but i should get it checked out.

she printed the pictures she took and i asked my nurse practioner if she knew what it was. she said she can't read ultrasounds, and even when i told her what the sonographer said she ust kinda disregarded it and kept the appointment going....

i was doing research on ovarian ultrasound pictures and types of ovarian cysts on the internet and i came across a picture of a ovarian teratoma  that looks alot like the "light spot" in my ultrasound.

i never had an ultrasound to diagnose my pcos. the diagnoses was primarly made by blood tests and the symptoms i had/have. i read that teratoma cysts have some of the same symptoms as pcos patients. is it possible that i was misdiagnosed?
Member Comments (3)

by kimmywah, Apr 08, 2008 10:04PM
To: RacherBunny
Hi,
Welcome.
If you are not happy with anything that you have been diagnosed with, then DO go to another doctor.  In my opinion a sonographer is only (no disrespect intended)  the technician, so you should be going to a GP or a gynecologist to get this properly assessed.  
Best of luck to you, and this is definitely the right place to come to be informed about these issues.

Peace...Kim

by nyc lady, Apr 09, 2008 10:10AM
A Sonogram should be read either by the GYN or a radiologist.  Please contact the GYN directly and ask the GYN about the cyst.  If you feel like you are still not getting a good answer, then perhaps you could see another doctor.

It probably is nothing, but, you want it checked to be certain.  How did they diagnosis  you with PCOS without any sonograms?  How are they treating the PCOS?

Pam

by RacherBunny, Apr 25, 2008 09:02AM
at first my gyn just made a diagnosis based on my symptoms. she sent me to a lab to have blood work done, and she said the results "clearly" showed pcos (which i think is bull because i read that if i had something else there is a possibility that my blood could show the same results as if i had pcos).... but she didn't do anyhting else to confirm or double check.
i saw this gyn (literally) just 2 times.she gave me a prescription for metformin 500mg and told me to go to an endocrinologist, who put me on 800mg. i saw this endocrinologist  (mostly students which again i think is bull) a few times. my periods never went normal, and by the time he wanted to run blood work i was 18 with no insurance or money to pay for anything.
now that i have insurance and some money i made an appointment at johns hopkins and the day before is when i asked the sonographer to do a quick look.
heres a link to one of the ultrasound pictures:
http://i176.photobucket.com/albums/w165/RacherBunny/sonogram2.jpg

so my plan now is to make an appointment with my new gyn/endocrinologist, talk to her about my issues, get a referral for an official ultrasound, and deal with the results.
thanks for everything!!
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