Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
ALS Community
This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).
Is any of this ALS related possibly?
by Fedup4doctors, Apr 14, 2008 01:27PM
Starting in around the year 2001 or so, I was diagnosed with Hepititas C related arthritus and Chronic Pain Syndrom with muscular atrophy. Then shortly after, Cavernous Hemangioma of the liver which has been growing over the years.
Then in 2004 I had a bought of Thrombosis and neurological problems with limbs after that. Migranes and eye pain started. Dizzy spells. Then a year ago I stopped being able to eat. I have been loosing a lot of weight and I am 99 pounds.
I have been fallling down in the day and hanging onto furniture while the house spins getting in and outer body sensations, flashes of lightning and shadows and halos. At night I sometimes wake in a moment of convolsions unsualy trying to gasp for air and at first think earthquake. Last night the convulsion lasted a long time and I was partialy awake and was hallucnating, seeing and hearing things. My neck was contorted backwards and I thought it would snap. I shook violently unable to speak. I was very sleepy after but fought to stay awake all night.
I am having bladder problems, memory problems and can not remember how to cook or what i am doing half the time.
I smell burnt weird strange intense smells no one else can smell. I am cold all the time or too hot. Some days my limbs wont move when I need them to. Sometimes my joints are in so much pain I can not walk or lift up my arms. I have worm like feeling up my spin and in my limbs and uncontrolled movements.
I AM ON NO MEDICATION AND I DRINK NO ALCOHOL. I DO NOT USE DRUGS.
Doctor disbelievs me about the convolsions. He wont send me back to a neurologist, wont give me a brain scan. 3 yrs ago I had a EEG, but not the kind where they sleep deprive you. Three years ago I was not convulsing. Of course the scan was normal. but I frequently hallucinate if I have had insomnia. How accurate is an EEG?
I get up to 2 months of insomnia at a time.
My diagnoses? Mental illness of the personality disorder disociative disorder type. With possible Schizophrenia and or Bipolar Disorder on top. A doctor, not a psychiatrist gives me this diagnoses before I even sit down in his office to talk to him. I had never met him before. He treated me with absolute contempt. I went to him out of respect for my physician who asked me too.
My husband and I say............" what the heck kind of schooling did these doctors get? something physical is obviously being missed......NOT MENTAL! It doesn't take a brain scientist to figure that out.
Now I am stuck in a small town with a label and they don't let patients move to other doctors or they are labelled difficult. I have had this doctor for 4 yrs. He does not believe you can have a concious sezier or convulsion. What planet is he from?
I am fed up, hurt and so very angry.
Help.
Then in 2004 I had a bought of Thrombosis and neurological problems with limbs after that. Migranes and eye pain started. Dizzy spells. Then a year ago I stopped being able to eat. I have been loosing a lot of weight and I am 99 pounds.
I have been fallling down in the day and hanging onto furniture while the house spins getting in and outer body sensations, flashes of lightning and shadows and halos. At night I sometimes wake in a moment of convolsions unsualy trying to gasp for air and at first think earthquake. Last night the convulsion lasted a long time and I was partialy awake and was hallucnating, seeing and hearing things. My neck was contorted backwards and I thought it would snap. I shook violently unable to speak. I was very sleepy after but fought to stay awake all night.
I am having bladder problems, memory problems and can not remember how to cook or what i am doing half the time.
I smell burnt weird strange intense smells no one else can smell. I am cold all the time or too hot. Some days my limbs wont move when I need them to. Sometimes my joints are in so much pain I can not walk or lift up my arms. I have worm like feeling up my spin and in my limbs and uncontrolled movements.
I AM ON NO MEDICATION AND I DRINK NO ALCOHOL. I DO NOT USE DRUGS.
Doctor disbelievs me about the convolsions. He wont send me back to a neurologist, wont give me a brain scan. 3 yrs ago I had a EEG, but not the kind where they sleep deprive you. Three years ago I was not convulsing. Of course the scan was normal. but I frequently hallucinate if I have had insomnia. How accurate is an EEG?
I get up to 2 months of insomnia at a time.
My diagnoses? Mental illness of the personality disorder disociative disorder type. With possible Schizophrenia and or Bipolar Disorder on top. A doctor, not a psychiatrist gives me this diagnoses before I even sit down in his office to talk to him. I had never met him before. He treated me with absolute contempt. I went to him out of respect for my physician who asked me too.
My husband and I say............" what the heck kind of schooling did these doctors get? something physical is obviously being missed......NOT MENTAL! It doesn't take a brain scientist to figure that out.
Now I am stuck in a small town with a label and they don't let patients move to other doctors or they are labelled difficult. I have had this doctor for 4 yrs. He does not believe you can have a concious sezier or convulsion. What planet is he from?
I am fed up, hurt and so very angry.
Help.
Post Comment
