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Anyone with Hirschsprung disease??

by Maria24, Apr 24, 2008 08:50PM

My Husband was diagnosed at 18 days old and as a result was given a colostomy. Ive had 3 operations so far to try to correct the colostomy but with no good results. anyone care to share there ordeal with me?

Member Comments (2)

by lkaukett, May 13, 2008 11:44AM

To: Maria24

The Pull-Thru Network has a great list-serve for families of kids, and adults, who were born with either HD or imperforate anus - or have some other kind of dysfunction. There will be special programs at their St Louis national conference this summer. Check them out at www.pullthrunetwork.org

by mauleymo, Jun 25, 2008 11:20AM

To: Maria24

My son was diagnosed at 5 weeks old and is now 25yrs old. He had a pull-thru done when he was 8 months old and is doing fine.
I agree with Ilaukett, check with Pull-Thru Network.

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