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Neurology Community
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
Desperate for help
by kmjplus3, Apr 28, 2008 09:58PM
I am so desperate for help. About 4 - 5 years ago, I had started to experience tingling and numbness in both of my legs and feet. I thought it was Restless Leg Syndrome and ignored it. One day I noticed I could not feel my feet at all. No tingling, no pain, no feeling at all. I could walk on hot coals and not even know it. About a year ago, I started having a drop foot and paralysis in my toes, of course causing falling at times. I did not ignore this for 4 years, I have seen many doctors, neurologists and specialists. Nobody has been able to help me. I have a severe axonal neuropathy in both feet also starting to go up my legs into my knees. I am also starting to have pain and tingling in my hands. I have had about 7 months of high dose IVIG treatments.
Things that may have contributed are: a herniated disc at L5-S1 about 15 years ago (I have not seen a doctor for this injury in about 10 years), a fall down some stairs about 5 years ago. I have had Grave's Disease over the past 2 years, now under control and I also had some benign ovarian tumors removed over the past few months.
Any advice or help would be appreciated. Thank you so much.
Things that may have contributed are: a herniated disc at L5-S1 about 15 years ago (I have not seen a doctor for this injury in about 10 years), a fall down some stairs about 5 years ago. I have had Grave's Disease over the past 2 years, now under control and I also had some benign ovarian tumors removed over the past few months.
Any advice or help would be appreciated. Thank you so much.
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I am not very experienced, but you may as well consider going to a neurologist
Good Luck
Here's my advice:
1) have extensive blood tests done, and have them repeated every 4-6 months. A local friend of mine who was told (after a few years of suffering) that he was down to 3 months to live. Blood tests had been normal. One final re-check, and a B-12 deficiency showed up. He has recovered and is back working. It could be any of the B's, D, etc. Test everything. Turns out I have a D deficiency - minor - unknown whether it's related to symptoms.
2) I'd take a sublingual methylcobalamin tablet and CoQ10 capsule daily along with my multivitamin. These are the building blocks for nerve repair. If your body decides to repair itself, having plenty of construction materials on hand will make it faster and easier work.
Best wishes,