This patient support community is for discussions relating to Celiac (Sprue) disease, anemia, behavioral changes and neurological issues, bones and osteoporosis, dental issues, diet and nutrition, infertility, gastrointestinal issues, gluten-free recipes, growth issues, infants and children with Celiac, pain management, and skin and dermatology issues.
Have you tried the product Glutenzyme? I have had a bit of success with it. It is not recommended for celiacs, though.
I finally achieved a few symptom free weeks last summer after about a year of working to eliminate all gluten from my diet. Then there was a family emergency that put me under a lot of stress for a few days. After the emergency passed, I took only one half of a Xanax pill (a very small pill) to help relax my muscles and help me get a good night of sleep. Instead I got a full blown celiac reaction with anxiety, gas, and pressure and burning in my abdomen. Xanax was listed as GF on some Internet sites, so I did not call the manufacturer before using it, and I had not used it since I was diagnosed with celiac disease. I call Pfizer and asked them if they put gluten in Xanax as a filler, and they told me that there was purposely added gluten in it. It took a week for the symptoms to start to subside, and another week for them to go away completely.
A friend with celiac disease told me she got very sick from just using a toaster for her gluten free bread at someone else's home, where the toaster had been used for regular bread - just some contamination with crumbs were enough to do it.
This is why it is very important to not only inquire of manufacturers of food, prescription drugs, vitamins, or anything you consume even in very tiny quantities whether they add gluten to the product, and also, if the product is produced were it can in anyway be cross contaminated by other products containing gluten. Even wheat flour in the air can be a problem. I got glutened once from the dust of flour being stirred into gravy in a pot in the same vicinity as some of my gluten free food.
So yes, one bite of cake IS a BIG dose of poison!
A while back you asked me for breakfast food suggestions. I hope you found my answer and are enjoying some new things to eat. Clan Thompson's newsletter recently announced that General Mills is now making gluten free Rice Checks. But be sure that you don't get an old box that has malt from barley as an ingredient. The new ones have a gluten free label on the front. I found some at Wal-Mart the other day, and they taste better than other gluten free dry cereals I have found so far. Also, they are fortified, which does not seem to be common for many gluten free products made from grains.
Oh and be careful sharing cooking surfaces that gluten was prepared on. I had a waffle iron I was using to make waffles for me and for the man. I was deathly sick the next time I made waffles for me since I evidently didn't get it perfectly clean!
I gave up on fried things long ago.. though chick-fil-a is supposed to have gluten free waffle fries :)
kitty