can 50 years of seizure drugs cause visual distubances

[juliewave]

II have problems with vision, balance, dizziness, ground moving, push down heavy feeling,  and heavy arms.  It has happened three times in my life.  It last from 9 months to over 2 years.  It starts with a change of seizure medication or change in dosage of the same medication.  One time it was stared with ativan and I now know the bad information on withdrawal from that drug.  I was wondering if anyone knows of any information on long term use of epilepsy drugs like tegretol and any possible links to my problems.

[NcokeO]

um i have been recently Diagnosed with Epilepsy and I have the same feelings every once and a while my Doctor and another person a freind i know that has Eplipsy much worse than i do says its an Aura.

The main symtoms that Really Related to me are the Ground Moving and A push Down Heavy feeling almost like an invisable sink hole. then i feel like a pop back out.

I am 22 and i take Kappra.

[juliewave]

I have always had an aura. Mine has been a tingle like sensation.  The other problems like tilting, ground moving, distortions, heavy push downfeeling heavy arms etc.  are not auras for me. Did the ground moving and the heavy push down feeling start with Keppra? .  How long does your last for?

[NcokeO]

well i only have been on keppra for about 2 years and it they will come and go. It usually happens to me when i am walking around it never the moving downward and pop up feeling never happens when i am sitting. so when it does happen I let who i am with i am going to sit for about 5  to 10 min. My worst one the most recent  kep happening for abou an hour, and me an my mom were in th old downtown area that was having the Ice sculpture festival. I let her know i was not feeling right.

The other disterbances i have had that are alot  more common for me is a install feeling of moving forward fast like running forward 10 to 20 ft and then slamming my self back into my body. that one always made me dizzy and sick feeling. I remember that happening b4 my first seizure too.

[juliewave]

Today I have the usual distortions with some tilting and an extreme push down feeling.  I had my dilantin increased slightly from 200 mg twice a day to 200 in the morning and 230 at night but I don't think it is causing any extra problems.  Have you or a member of your family ever been diagnosed as having migranes.  A  neurologist asked me that one time because a lot of migrane sufferers and temporal lobe people with seizures sometimes experience distortions in size or a feeling that everything is in fast forward.  Look up Alice in Wonderland Syndrome on the internet if you or any one in your extended family suffers from migranes.

[juliewave]

Today I have the usual distortions with some tilting and an extreme push down feeling.  I had my dilantin increased slightly from 200 mg twice a day to 200 in the morning and 230 at night but I don't think it is causing any extra problems.  Have you or a member of your family ever been diagnosed as having migrane headaches?  A neurologist asked me that one time because a lot of migrane sufferers and temoral lobe seizure sufferers sometimes  experience distortions in size or a feeling that everything is fast forward.  Look up Alice in Wonderland Syndrome if you or any one in your extended family suffers from migranes.

[NcokeO]

umm see my seizure i had are left frontal partial onset seizures I hope they are not going to get more complicated.... I have a post that has a few questions i would like answered too lol. i don't get headaches, let alone migraines. One of my Nerologists thinks my Tics could be seizure related my other things they could just be some thing in its self.

Thanks a bunch for bringing up the new info. Because its like i am zipping forward then halt in my place.

I might have the occasional head ache and thanks i will ask around to see if any one in my family has miagraines. i know my mom has had two in her life.

[juliewave]

I f you can, I have found that neurologist at university hospitals can help with difficult cases.   Good Luck