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Fibromyalgia / CFS Community

This patient support community is for discussions relating to fibromyalgia, Chronic Fatigue Syndrome (CFS), and pain management.
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I need your help for my 10 year old

by maskat2324, May 05, 2008 10:35AM
I am grasping at straws at this point.  My 10 year old has just been released from the hospital after being in a childrens hospital for 15 days. We have been battling for 2 1/2 years, five different diagnosis, and no answers. She has extreme pain and swelling in both her feet. They can't be touched at all on the top. She walks with the assistance of a walker. She tires out easly. After spending so long at Egelston CHildrens Hospital, with some of the top notch neurologists from Emory University, it was said she has Periphrial Neuopathy with no known cause. It's even been asked if it was phycological. I have seen her on her worst days and there is no way that this is in her head. She's been diagnosed with, Fibromyalga, Polyarthritis, CFS, Myofacial pain syndrom, RSD, RLS. None of this has made since. My mom was talking to me about mold and mildew and reminded me that we once lived in an old farm house that had lots of mold and mildew since she was born. We have been out of that house for 5 years now. We had lots of the sinus infections,bronchitis, and pheumonia growing up. ANd now this. Could Mold cause these things and if so what do I do from here?
Member Comments (4)

by PlateletGal, May 05, 2008 11:29AM
To: maskat2324

I'm sorry to hear what your daughter is going through... and all of you, for that matter. In my opinion, molds or other toxics can cause an illness. And there is some evidence to back this up. I pulled this from my community:


Q: Have you seen evidence in some patients that CFS can be caused by exposure to things such as mold, or other environmental toxins?


Dr. Bell: Yes, mold and environmental toxins can definitely cause or initiate ME/CFS. Somehow toxins affect the cytokines in a way similar to the classic mononucleosis infection to set off the illness



link:

http://www.immunesupport.com/library/showarticle.cfm?id=8474&T=CFIDS_FM&B1=EM110707F

by PlateletGal, May 05, 2008 12:30PM

Here's another document on the topic. Of course I believe CFS isn't the only illness that can follow a toxic or mold exposure. A toxicologist I know agrees with me... he's seen many people who have had unexplained or inflammatory conditions after an exposure.

1: Sci Total Environ. 2001 Apr 10;270(1-3):27-31. Links
Chronic fatigue syndrome following a toxic exposure. Racciatti D, Vecchiet J,
Ceccomancini A, Ricci F, Pizzigallo E.Department of Infectious Diseases, G.
D'Annunzio University, Chieti Scalo, Italy.

by tbop, May 09, 2008 08:05PM
To: maskat2324's
My 10 year old is having alot of pain, everyday.  She says that nothing helps.   She also gets realy cold .  Like I do cold to the bone.   I have fibromyalgia.  I have heard of 14 years old but not until  now 10 years old having this.  I thought she may.    I to have mold, my towlet leaks.  which the mold is on the wall black I keep it cleaned up.  I am getting it fixed right away now.   I should have already.     It is  trouble that kids have to have this.  God Bless you & your child.

by jordfam32, May 12, 2008 12:02AM
i feel for you, my 12 year old is dealing with much of the same. especially the tiredness has your daughter been looked at for arthritis esp.PA. I have PA and my feet and ankles swell 3 times the size, I can understand the pain, its incapacitating, no one can understand that its not just a matter of taking pills, it will overshadow your life when there is no relief.. I hope you find answers
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