Substernal benign thyroid with Horners syndrome

[lizyorke]

Hi, I was diagnosed last February as having a very large Hashimoto's goiter with right ipsilateral Horner's syndrome. I have always had asthma and two months before before this was diagnosed I had several episodes of respiratory distress where I was nearly hospitalized -I wanted to be treated at home with prednisone and nebulizer. CT scan shows that though I have a patent airway, I am hoarse, my trachea is pearshaped and the thyroid is extending deep into the superior mediastinum on the right side. My right trapesius muscle is often in spasm, I have tension headaches on the right side and I have pain in my right shoulder. I have been referred to Yale Medical center to see Professor  Robert Lesser who is, I understand, an expert in neuro-opthalmology.  I am aware that pressure on the nerve of he eye is the issue of concern and that this will be gradually increasing.  I am also aware that delay in getting surgery done can add to the difficulty and complexity of the task. I have already had three months of testing and referrals, since the Horners began. Any surgery planned will take time to be set up. My question is - should I wait for this consult in two months time, or should I push for more immediate surgery-hoping thereby to avoid further damage to the nerve and to my lungs, trachea and larynx. I am interested in hearing of treatment options, risks, benefits and possible outcomes, especially as far as the Horners syndrome is concerned - Any advice will be welcome!

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[AR-10]

I would start by calling his office and get put on the cancellation list. There may be an opening next week.

You might also try to talk to his nurse. If you explain the situation fully, the nurse may be able to clear a spot in his schedule and get you in sooner. There are usually holes left in the schedule to accomodate people with situations that will not wait two months.