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Polycystic Ovarian Syndrome (PCOS) Community

This patient support community is for discussions relating to PCOS including anxiety, baldness or thinning hair, high blood pressure, high cholesterol, depression, type 2 diabetes, genetics, heart problems, increased hair growth (hirsuitism), infertility, menstruation (periods), obesity, ovarian cysts, pelvic pain, pregnancy, skin problems, sleep disorders, and weight gain.
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new to all this

by toot2743, May 09, 2008 05:43AM
Hi there.

I was diagnosed with PCOS when i was 16 (am now 21). No one ever really explained to me what exactly it was but from asking around and doing some research i now have a pretty good idea. When i first started my periods i had it constantly for 2 years (every day for the whole two years and it was VERY heavy). then they just stopped altogether. I was referred to an ob gyn and I was given metformin but it made me very very sick so i stopped it. I lost a fair bit of weight and my periods came back but they have gone again. I have not been given any more medication. I cant take the pill as it gives me migraines which means im at an increased rick of having a clot in my brian aparently.

All my ob gyn told me at the time was that i would have problems getting pregnant and that if i wanted kids i would be best to try in early 20's. My partner and i really want to have children but im scared to even try as I know there is increased risk of miscarriage etc... i dont know if i can put us both through that but i still really want kids.Does anyone know what the chances of having a successful pregnancy with PCOS is or has anyone had experience of this same feeling?? any advice or info would be greatly appreciated.

thanks
Member Comments (3)

by Tarobinc, May 12, 2008 12:13PM
I have PCOS and I am currently ttc. My friend had 3 babies and she has PCOS and no miscarriages, thankfully.  She did take Metformin but she was able to tolerate it.  She had tried Clomid but that didn't help her.  Remember, everyone is different and sometimes it takes trial and error to find out what will work for you.

I am currenlty undergoing my 2nd attempt at IUI and I am 35! ( I didn't even know I had PCOS until I attempted to have a baby.)  The first thing I did was see my OB who checked the thickness of my lining. It was way to thick since I wasn't having normal af every month.  Plus, I was not ov.  She gave me provera to bring on af and to help my lining become less thick.  I took provera for about 3 months prior to starting IUI.

I did ov on my last IUI.  This IUI my lining is right where it should be and I had 3 good follies that were ready.  My body reacted well to the hormone therapy.  I will say I was started from the beginning on injectables along with Clomid.  I do a monitored IUI cycle.  My first attempt at IUI was halted b/c I had 2 cysts on my lt ovary that were growoing after being on Clomid and having my first shot.  Talk about frustrating!

If you have any questions, just ask.  I will try to help you the best I can, having been where you are now.

by toot2743, May 21, 2008 06:20PM
To: tarobinc
thanks for the reply. Sounds like you've been through a lot! have one more burning question I was wondering if you could give any advice on...

This is very much a personal question that i'm going to ask now but i do need some guidance on it.... my husband to be doesn't say much about the fact that i may not be able to give him children. When i try to talk to him about it he just says he doesn't mind and that there are other things in life but i don't think he's really telling me how he feels. it worries me as he would make a great dad and i know he really wants children. I just don't know what to say or do anymore. Im worried that when it comes to us trying to have children - if it doesn't happen, there's going to be a whole set of other problems. Its a big thing to us, we both want children but it might not be an option. I know there's loads of medical help available and that I have every chance of having a child with that help but do you ever just get a really strong gut feeling that it's not going to be for you? I've always had the feeling even before I was diagnosed. The docs have said its a pretty aggressive form of PCOS whatever that means and that if I want kids we have to try very soon problem is we're not financially ready. It's just so confusing and  frustrating. Sorry for rambling on there but it's something thats been playing on my mind for ages now. Thanks for any advice in advance

toot xx

by morgan7120, May 23, 2008 04:13PM
To: toot2743
hi there. I also have PCOS and was diagnosed almost 2 years ago. My doctor had put me on 250 mg of metformin a day-which was the lowest dose she could do. It made me very sick and i quit taking it. After a few months my doctor stressed to me that it was important for me to be on some sort of medication to help me. She prescribed me metformin ER - which is the extended release- I was hesitant at first because of how it made me feel, however, now im taking 1000 mg a day and I feel great. She had told me it was new, and im not sure if you have had the chance to try it. It has really helped me out.
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