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Blooc Clots from Treatment?
by gah_70, May 09, 2008 04:38PM
, May 09, 2008 04:38PM
I feel kind of funny about posting an update on myself here, so to make it not seem so self serving, I'll ask a question, too.
I ended up in the ER Wednesday night because I'd been suffering for a while, actully, with shortness of breath. I assumed it was just my typical anemia from treatment, so I didn't think too much of it. But, it got really bad this week, and I didn't think I could ignore it any longer. Went to see my Onclogist (who is going to be very fired shortly). Knowing my history of DVT and pulmonary emboli, he said it was probably just bronchitis. Gave me two IV bags of antibiotics, patted me on the top of my head, and sent me away. So Wednesday, when I couldn't walk from the couch to the bathroom without gasping for air, I went to the ER (when I arrived, my O2 sat was 69). Turns out I have three blood clots in my lung. Okay, that's bad enough, but my platelets were 20 (since gone up to 40), so they cannot give me any anticoagulant until they get to at least 50. I'm already on Arixtra, but had to stop at the first of the week because of the platelet thing.
OK, so have any of you ever had a problem with clots resulting from treatment? If so, which ones? I think what confuses me so much is I was already on blood thinner, and I did not have edema in my ankles like I normally do when any of my blood problems. Any ideas? Apparently, my Oncologist doesn't have any!
Gail
I ended up in the ER Wednesday night because I'd been suffering for a while, actully, with shortness of breath. I assumed it was just my typical anemia from treatment, so I didn't think too much of it. But, it got really bad this week, and I didn't think I could ignore it any longer. Went to see my Onclogist (who is going to be very fired shortly). Knowing my history of DVT and pulmonary emboli, he said it was probably just bronchitis. Gave me two IV bags of antibiotics, patted me on the top of my head, and sent me away. So Wednesday, when I couldn't walk from the couch to the bathroom without gasping for air, I went to the ER (when I arrived, my O2 sat was 69). Turns out I have three blood clots in my lung. Okay, that's bad enough, but my platelets were 20 (since gone up to 40), so they cannot give me any anticoagulant until they get to at least 50. I'm already on Arixtra, but had to stop at the first of the week because of the platelet thing.
OK, so have any of you ever had a problem with clots resulting from treatment? If so, which ones? I think what confuses me so much is I was already on blood thinner, and I did not have edema in my ankles like I normally do when any of my blood problems. Any ideas? Apparently, my Oncologist doesn't have any!
Gail
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I am so sorry to hear that you are having to go through all of this. I aggree you should fire your oncologist. I hope your platelets will get back to normal so you can get the medication you need. Your profile says you are in the hospital. I hope you get back home soon. I will be thinking about you. Let us know how you are doing when you can but most important just take care of yourself. I still hope to get to Murray someday so we can meet in person. Sending you a big hug.
Linda
Aren't you planning to go back to MD Anderson next month?
I do hope you feel better.
You are in my thoughts and prayers. Katie and I were worried about you, you know....
Sending lots of love,
Mary
thanks for update
Hugs
butterflyTc
I wish I knew something about this. I will do some research today to see what I can find. You know how I feel about your dr already so I won't say anything else. However, and this is NOT an empty invitation, I seriously mean it; you are welcome to my guest room for as long as you want it if you want to come here for your treatments. It isn't that far considering your choices there and you could come here, have chemo, spend a night or 3 and go home. It sounds like a hassle I know but given your options.... Gail, I hope you know that I REALLY mean this. Your husband would be more than welcome to come also. We are crammed in here because we just haven't had time to get properties sold or even think about house hunting since we got married, but coming from a family of 10, I believe there is always room at the "inn".
Love,
Jan
Sorry that you are going through this , hope you are better soon and sending prayers your way.
Best wishes Angie
Sorry you are going through this on top of everything else.
I have also had PE in my lungs, post op from hysterectomy.
I had a six day stay in hospital. Had clixane and then heprin which I was told would not get rid of the clots (your body apparently breaks them down) but would prevent more forming.
I am not sure about the chemo drugs but know that I can never have any HRT as these are high risk for clotting.
Your oncologist definitely needs to be fired. It is Unbelievable that they did not suspect PE especially if you have a history. Maybe a referral to a Hematologist is needed as well
My prayers and thoughts are with you.
Love..Kim