This patient support community is for discussions relating to undiagnosed symptoms, breathing difficulties, feeling cold, cough, diarrhea, dizziness, fainting, fever, indigestion, itching, nausea, numbness, pain (chronic), paralysis, rash, sweating, swelling, urination problems, and vomiting.
They diagnose things like lymes, auto-immune conditions and also things like Fibro(I dont know if they handle CFS though)
Whatever docs have done blood work rhumies do them that much more in depth because so many things can hide or not be picked up except to run in depth panals.
I wish I had more suggestions or knew what it could be causing your such a terrible time
I hope your able to find the answeres you need as soon as possible.
It's amazing how doctors tend to prescribe psych meds when people are suffering from physical illnesses. I was put on Valium because of Graves' disease (in addition to antithyroid medication) and the Valium is making me paranoid, numb, agoraphobic and lethargic, so a doctor is helping me to taper off the medication, and the taper is horrific, too. I think you ought to get a second opinion from a rheumatologist and get a test for rheumatoid factor in your blood. You also might want to see an alternative practitioner who might be able to help you with more natural methods. It seems to me that part of your problem could be all these psych meds. Read YOUR DRUG MAY BE YOUR PROBLEM by Dr. Peter Breggin. I found it very enlightening. I wish I could help with your diagnosis, but I'm not a medical doctor. You might have fibro. You could have CFS or you might have rheumatoid arthritis. There are lots of medical problems which fit your symptoms. You might even have some kind of infection or virus or even Lyme disease.
Moosiegirl