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Ovarian Cancer Community

This patient support community is for discussions relating to ovarian cancer, biopsy, chemotherapy, clinical trials, genetics, hysterectomy, immunotherapy, radiation therapy, screening, and staging.
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Misdiagnosed

by Frustrated864, May 11, 2008 10:31PM
It's been over a year now since I started with multiple symptons. I started to bloat, I have pain in my stomach and also on my right ovary. My legs seems to hurt more and my back also. After running different test on me they decided it was my gall bladder. Here's what I don't get. According to my doctors I've had a cycst on my right ovary for over a year.I know I'm prone to cyst but they won't do anything about it.I've had them rupture so I know what it feels like. They have ran different types of test on me and they can't figure out what is going on with me. I've gone to a GI specialist just to be told that my gallbladder was good and they should have never touched it to begin with. My mother was 35 years old when they diagnosed her with ovarion cancer. When I asked the doctor if I should worry about this He said no. This isn't something that could run in the family.Right now I'm scared. My periods are very heavy and my stomach seems so bloated and I'm uncomfortable. It seems like I'm always in pain. My cramping is so bad  now that I even call in to work. I feel like I'm going crazy or that's how they have made me feel. I don't know what else to do.. I've read the symptons on ovarion cancer and it's the exact symptons that I'm having.  Am I crazy??
Member Comments (6)

by kimmywah, May 11, 2008 10:59PM
To: Frustrated864
Hi there,
You are definitely not crazy.   Ovarian cysts can cause these symptoms and you are right they can also be symptoms of cancer, but try not to worry as most times cyst turn out to be benign.  But....you definitely need to go and see a Gynecologist and have your symptoms properly investigated.  You do have a slightly higher risk if it is in your maternal family.  
Try not to worry but do go and see a specialist as soon as possible.
Keep us posted and good luck.

Peace and Love...kim

by Jan214, May 12, 2008 07:05AM
Find a different Dr RIGHT NOW.  Do NOT go back to a quack that would tell you something so incredibly stupid.  My mother died of OvCa when she was 38, I have it (3c)and 4 of my 5 sisters had it, fortunately they were caught early.  Oh yes, there were many aunts on my mom's side that had it so did my Grandmother so screw that.  My cancer started in the summer of 2005 and was not diagnosed until Sept 2006.  I didn't have any complaints, but I had a small pea size knot in my stomach which we thought was just a muscle thing.  I had my annual exam during that time also and nothing was "felt".
While it is true that 99% of cysts are benign, with your history you need to be extra sure.  Find a really good gyno and take it from there. DO NOT stop until you find an answer.  I don't want you to be yet another one who didn't find out early that there was a problem, if there is one.  Good luck and KEEP FIGHTING FOR YOU.  Oh, another thing someone on here says alot but I haven't seen her lately, tell the Dr to prove to you that you don't have ovarian cancer.  Or as my friend told her Dr., "do you want to find out what is wrong with me or should I let another Dr find out what is wrong with me so he can testify against you in court".
Jan

by lucymullis, May 12, 2008 07:53AM
With your family history, you need to be examined by a gynocological oncologist.  My ovarian cancer was indeed inherited.  10% are hereditary.  Best of luck to you.

by marie3B, May 12, 2008 08:55AM
Jan above is SO right.  Find another doctor today.  My mom died of ovca age 51.  Mine was diagnosed at age 46.  For a doctor to tell you not to worry about a family history is irresponsible.  It does not mean that you will get it, but it does mean that you need to be much more vigilant in your care.  An appointment with a gyn/oncologist is a good way to go. Good luck to you.  You are probably just fine, but probably is not good enough.  Keep fighting until you are satisfied you have been given the best of care, and have the answers you need to ease your mind.   Marie

by ChrisP2236, May 12, 2008 02:19PM
To: frustrated864
I agree with Jan and the other ladies - find a good gyn or gyn/onc ASAP.  My sypmtoms went on for 18 months before I finally asked my doctor if it could be ovarian cancer.  She got the deer-in-the-headlights look because she knew she should have thought of checking for ovca when my IBS symptoms kept getting worse and all the tests turned up negative.  You are hopefully going to be fine, but you must be your own advocate and find a gyn who will listen, take your concerns seriously and run the tests you need to get at the cause of your symptoms.  Best wishes and let us know how things go.  Chris P

by crecco, May 12, 2008 05:51PM
I have to agree with Jan and the others. Find a different Dr right away. While you may not have ov ca, any Dr that will not listen to you is not a Dr worth going back too. I to was one of those who was treated for sevral different things before ov ca was found, among them IBS, depression and they were getting ready to look into thyroid problems. But we know our own bodies and know when something is wrong. Find another Dr right away and keep us informed of what you find out.
  Chris
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