This forum is an un-mediated, patient-to-patient forum for questions and support regarding
cerebral palsy issues such as: Books and Journals, Daily Living and Social issues, Diagnosis, Education and Schools, Equipment (orthotics, walkers, wheelchairs, cars, etc.), Family and Patient Support Groups, Financial Help and Support, Insurance Issues, Legal Rights and Issues, Research, Long-Term Care, Treatments (Biofeedback, Hyperbaric Oxygen Therapy, Conductive Education, Suit Therapy, Botox, Baclofen, PERC, etc.)
He is 7 years old. I started doing heavy research recently because for 4 years they have told me he is not having siezures when I've been convinced that he is. They are not the grandmal seizures. One doctor said she would classify them as Complex Partial Seizures and has put him on meds-which since then he's not had any un-provoked falls. Another wants to take him off of them. I don't know if they have diagnosed per say. They won't give me a specific diagnoses. But there "Asessments" are Static Encephalopathy, mild Encephalopathy and diffuse Encephalopathy. I went to get his birth records yesterday, and they wouldn't give me one of the reports, and the other had "nothing" on it. I'm very suspicious as to what is going on. All's I have asked from them is to help him the best they can and they treat me like we are an inconvenience and that nothing is wrong with him. I'm so tired and fed up and heart broken for him.
I'm very sorry to hear about your daughter. What degree of CP does she have? I hope that you have good medical support.