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Need some support/give me a straight answer (MPA)

by oghre, May 15, 2008 01:33AM
Im sorry I dont know where to post this but I just went through the worst weekend you could ever imagine. My 22 year old girlfriend got sick a few weeks ago. REALLY sick. She went to the hospital and had her lungs full of blood and her kidneys were almost shut down. She BARELY survived the weekend (and I mean BARELY) and was diagnosed with

Microscopic Polyangiitis

We have started the long road to recovery and its going to be really long. She is on ALOT of steroids and chemotherapy once a month (this JUST happened last week). Recovery will take about 1 1/2 years and a threat of a relapse of what I just went through within 5 years. From what I hear thats REALLY young for this disease and she has the most severe case of it.

I sure could use someone to talk too that has this disease or knows quite a bit about it, I have some questions I would like to ask if possible.

Thank you, Ive been dating this girl for 4 years and she means the world to me, Im a little scared right now and you would really be helping me more than you know
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