Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
This patient support community is for discussions relating to heart rhythm issues, arrhythmia, irregular heartbeat, implanted defibrillators, pacemakers, and tachycardia.
ireneo Female, 55 years Portland - OR Member since Feb 2007
Mood: ireneo is so tired...Dad has cancer not only in liver and lungs but in his spine, pelvis and legs. Oh dear. Journal Entry: "Not so good news here. I knew my Dad had ..." [Read]
scooter01 Male Vicksburg - MS Member since Oct 2007
I have a very high number of PVC's everyday. I've been to two EP's and both said the procedure is risky and they can't guarantee it will eliminate them. They also said if I happen to be having a quite PVC day, they may not be able to induce them for the ablation. Right now untill something more solid is offered to me or I develope a life threatening problem I will just live with them.
For me, it IS a quality of life issue. I have tens of thousands of pvcs per day. When it gets really bad, it is like having someone turn the lights on and off over 20 times per minute. It's hard to concentrate. It's hard to believe the "house" is structurally normal when the electricity is going berserk. Beta-blockers can act like a dimmer switch, but it hasn't changed the issue much for me.
She was also fortunate to have good health care providers in the sense that her doctors monitored her situation, rare as it might be to develop CM from PVCs--it happened.
So a periodic echocardiogram when you have high frequency is very important. Keep in mind that 30/pvcs per hour is considered high frequency. What would most of us give for that eh? 30 an hour, heaven. Weren't you having over 1000/hr Connie?
But you still have a few hundred pvcs now and then don't you?even with the two ablations.
Yep, about 1000/hour was "normal" for me. Now, I can go days/weeks....many a month or longer without any ectopicsEctopic pregnancy. I don't know how many I get now, but if I have a "spell" of them it generally last under 5 minutes and it's very rare. I just had an echo and bubble study done and at some point during the procedure, I started to feel some PVCs. Two seconds later, the doctor said, "she's having PVCs". I kinda chuckled and they disappeared as quickly as they came.
I think I would run pretty fast from any cardio who was eager to ablate for PVCs. I've seen a number of cardios (different cities, different reasons) over the years and although they knew about the frequent PVCs, they were all clearly against anti-arrythmics and ablation to treat benignBenign ear cyst or tumor Benign positional vertigo PVCs.
I absolutely agree when Upbeat suggests periodic echocardiograms in the case of someone with frequent PVCs.
The ablation was a complete success and I have not experienced dizzinessDizziness since. On my last holterHolter monitor (24h) monitor my PVC reading was 1 in 24 hours! On a recent follow - up visit I was told that I am now too healthy to be seeing a cardiologist! Here's to PVC FREE!
scooter01 Male Vicksburg - MS Member since Oct 2007
, May 19, 2008 09:42AM
To: All
Thanks to everyone for your comments.I have pvcs for 6 or 7 years now meds worked for a while but seem to be wearing off. I had to have a pacemaker installed backBack pain - low Back strain treatment in December.These pvcs are just hard to deal with.
taratownsend Female, 37 years Grand Rapids - MI Member since Mar 2008
Mood: taratownsend is praising God in my weakness! God will heal the humble and sick! Journal Entry: "They tell me
'Freedom is never free.'
I..." [Read]
For me, it IS a quality of life issue. I have tens of thousands of pvcs per day. When it gets really bad, it is like having someone turn the lights on and off over 20 times per minute. It's hard to concentrate. It's hard to believe the "house" is structurally normal when the electricity is going berserk. Beta-blockers can act like a dimmer switch, but it hasn't changed the issue much for me.
An E.P I recently saw said he would absolutely NOT do an abalation for pvcs, even while I have approximately 30,000 pvcs/day. So it is my understanding that it isn't a matter of number, not even a matter of quality, it is a matter of whether the doctor/patient believes the risk is acceptable. In my case, a specialist has deemed the risk to great for a benign condition, I have to give a lot of weight to that opinion.
Up until the CM, I had a structurally normal heart and after 25 years of dealing with PVCs, I had pretty much learned to live with them. Once I developed CM, all bets were off and the benefit of an ablation outweighed the risk of the procedures. Had I not developed CM, I'd still be flip-flopping away.
Personally, even though I have lots every day, I don't feel I am symptomatic enough to want to take the risk of a procedure that, in all likelihood, will not work (I am multi-focal). However, I gotta say that if I was really suffering, or developed CM as Momto3 did, I would probably go for it.
She was also fortunate to have good health care providers in the sense that her doctors monitored her situation, rare as it might be to develop CM from PVCs--it happened.
So a periodic echocardiogram when you have high frequency is very important. Keep in mind that 30/pvcs per hour is considered high frequency. What would most of us give for that eh? 30 an hour, heaven. Weren't you having over 1000/hr Connie?
But you still have a few hundred pvcs now and then don't you?even with the two ablations.
Yep, about 1000/hour was "normal" for me. Now, I can go days/weeks....many a month or longer without any ectopics. I don't know how many I get now, but if I have a "spell" of them it generally last under 5 minutes and it's very rare. I just had an echo and bubble study done and at some point during the procedure, I started to feel some PVCs. Two seconds later, the doctor said, "she's having PVCs". I kinda chuckled and they disappeared as quickly as they came.
I think I would run pretty fast from any cardio who was eager to ablate for PVCs. I've seen a number of cardios (different cities, different reasons) over the years and although they knew about the frequent PVCs, they were all clearly against anti-arrythmics and ablation to treat benign PVCs.
I absolutely agree when Upbeat suggests periodic echocardiograms in the case of someone with frequent PVCs.
Enjoy the day everyone!
The ablation was a complete success and I have not experienced dizziness since. On my last holter monitor my PVC reading was 1 in 24 hours! On a recent follow - up visit I was told that I am now too healthy to be seeing a cardiologist! Here's to PVC FREE!
So happy to hear you are still PVC-free. I'm PVC-less, but not quite free....Works for me!! Hope you're having a great day!!!