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Waldenstrom's Macroglobulinemia Community
This patient support community is for discussions relating to Waldenstrom's Macroglobulinemia, non-Hodgkin lymphoma, monoclonal gammopathy of unknown significance (MGUS), multiple myeloma, and plasmapheresis.
Thanks
by MadameB, May 18, 2008 06:26AM
Thanks for the input; I forgot to mention that I am also allergic to Rituxan, which makes me a complicated treatment risk. My first round of standard chemo included the rituxan and we moved from rashes to mucous membrane swelling as the chemo progressed to six rounds. I am have been "set free" by my current oncologist (I think he's stymied and upset w/ me for misunderstanding him). Am searching for a new oncologist and trying to manage extensive night sweats and fatigue. But I am diarying and moving my life along and have plenty of attitude to beat this. I am certainly not done! Any other ideas are welcome! MB
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It seems that you’ve been through a lot. It is good that you are keeping a positive attitude despite the complications that you had to put with.
A clinical trial may be best for you. You could try to look for a cancer center (these are usually attached to a University hospital) in your area and see if anything is up. There are a lot of drugs undergoing development in oncology, while trials may be difficult for rare diseases, most institutions would have a preferred protocol.
Best of luck to you.