This forum is for questions and support regarding arthritis issues such as:
Arthritis, Autoimmune Disease, Bursitis,
Fibromyalgia, Gout, Juvenile Rheumatoid Arthritis,
Lupus, Myositis, Neuralgia, Osteoarthritis, Polymyalgia Rheumatica, Rheumatoid Arthritis, Sciatica, Tendinitis, Vasculitis.
I wish some doctors would take more time to do a thorough medical history. I am sorry that he didn't do this with you, he should have. Do you have access to another rheumy? It is so important to have a good working relationship and if you are uncomfortable you definately should seek another opinion.
I have Stills disease and the labs almost always come back negative. It took me taking pictures of rashes and periods of swelling up and documenting fevers, keeping a daily symptom and pain journal to finally get dx'd correctly.
I do get injections done quite frequently in my hips and back. I have anakinra injections, and a lidocaine/steroid mix (I can't think of the prescription name for it right now) that one seems to help immediately, numbing the area. I do take steroids daily to help with my inflammation.
I hope he explained methotrexate to you in complete detail, it is a very powerful drug. I don't know what to say about him prescribing it so quickly, it doesn't make sense to me. Methotrexate is not like taking a Tylenol, it does have some pretty serious side effects. It is a disease modifying anti rheumatic drug (DMARD). I definately would be questioning his decision to have you start it so quickly.
I hope this helps some. If you need to talk, you can message me.
Your Friend,
Spastic aka Ada
Thanks for your reply. I am too very concerned about taking the methotrexate also, this was one of my main reasons for posting. My neighbor takes it for psoridic arthritis but she is on a very high dose along with Humira. But I know she has been very concerned about the side effects. I worry about the long term effect even though he has me on a low dose. I was just wondering if anyone else was put on this so quickly. Dont get me wrong the rheumatologist was very nice but I just thought he would be extremely thourough before prescribing an Rx of this magnitude. He also never told me about any side effects or long term effects of this drug as if he was just handing me some tylenol to take. The only thing he said was to call if I had any problems with the meds. I have not started them yet, I am waiting until Friday when I have a weekend to see how they will affect me. Anyway thanks for your response. So do you just take steroids and get injections?
Thanks
I have not been given the option of starting methotrexate yet. My dr's and I have talked about that treatment plan I would like to so I can hopefully get my monster, Stills under control and get my life back. But they are only going to give it to me when the steroids fail. If that makes any sense. I have always thought of methotrexate as a last defence kind of drug.
Right now my medicine regime consists of taking 20mg of prednisone 3xday, 800mg of neurontin 3xday, 10mg of flexeril 3xday, 800mg ibuprofen 3xday, .50mg of xanax 3xday, 100mg of trazadone at bedtime to finally knock me out for the night. I have a lot of pain with Still's. I usually get my injections when I see my Dr's on check ups and on those days when I just cannot stand the pain anymore.
I should be here off and on for the evening. Kids and hubby home, things start going kind of crazy now. Give your rheumy a call.
Your Friend,
Ada
Sounds like you are in rough shape, I hope that they come up with some answers for you and help get your Stills under control. They have you on a lot of meds too. So I am not sure what the worst of the evils are. Trying to deal with the pain and risk joint damage, or go on a lot of different meds or trying the methotrexate. I just dont want to create a new problem from the meds to fix the first problem. Seems like there should be more alternatives. I guess I will talk to his nurse tomorrow because I have to call back for my follow up because their computers went down when I was there. I can ask about my blood work and then talk to her about my concerns over the methotrexate.
Sorry this is so long but it is nice to get someone elses opinion.
It is crazy here too kids, homework, hubby and dishes!!
Thanks for your help!
I know that long term use of the steroids can give you osteoporosis so I guess its like as you said I don't want to create new problems from meds to fix the first problem. Ugh, what to do? Sometimes I just don't know.
Your Friend,
Ada
I am doing okay. It is funny my wrist that he injected feels a lot better, but my knee has been killing me along with some other joints today. It is also very chilly and rainy here today and that is when I feel the worst. I did not have a chance to get a hold of my dr. office today, I just got home from work and they are already gone. I am always so hesitant about meds but this one I am very hesitant about. I would feel better if given all the info. There is a lot of info about needing liver biopsies after being on this for a while and that sounds like no fun. I just wish that there was a solution for all of us without all the risks.
How are you today?