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Myasthenia eye pain
by raynbows, May 19, 2008 09:11PM
I have MG, all my symptoms are controlled except double vision. It is constant and causes daily headaches/eye strain. Any ideas for llng term medications/treatment? It's been 3 long long years! Im currently taking Prednisone , Mestinon, Cellcept. Dr prescribes occasional narcotic painkillers but keeps stopping them out of heath concerns... leaves me in a pretty frustrating situation.. help please!
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I'm sorry to hear all of these that you are going through. Myasthenia gravis treatment really entails a lot of patience and a very good physician-patient relationship. The medications that you are already receiving for your MG are top notch, and I commend your physician for giving you such. Unfortunately, some symptoms can still get past these treatments, and the solution might be to modulate the doses of your medications. I also suggest that you discuss with your doctors regarding working you up for a possible thymoma (mass or nodule above the heart area) which if removed, may help in the treatment of MG (though any surgery would have its own risks). I hope you and your doctors can find the right balance soon. Regards and God bless.