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314892 tn?1264623903

Dysautonomia and Hypothroidism

Hi.
Does anyone here have Dysautonomia or POTS along with Hashimoto's Hypothyroidism?

I have dizziness and tachycardia upon standing. I haven't been officially diagnosed, but my endo is going to have me try fludrocortisone.

It is very hard for me to stand still for any period of time and it is even hard for me to sit in a chair at times.

Mu hypothyroidism went undiagnosed for many years, despite me asking doctors about my TSH results always being in the upper end of "normal". I also have other autoimmune diseases.
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314892 tn?1264623903
My BP is normal (between 106/60 to 120/70).

I did have a long a long discussion with the endo on the potassium. I had an incident of low potassium (3.1) several years ago with paralysis. He is worried about Hypokalemic Periodic Paralysis (rare). I got my chart from the ER and it looks like I had an enteritis type thing, with abd. pain, diarrhea and a high WBC count.

Once he sees this chart, we will decide what to do. I am also going to talk to him about raising the dose of my thyroid medication because when I started it back in September, the dizziness improved some.

I have a medical background (microbiologist at Quest Diagnostics), so I get all the medical stuff the doctors are discussing. I'm glad I do, otherwise, it would be difficult to put the pieces together!

Thanks again for the suggestions!
Helpful - 0
492869 tn?1285018933
How is your blood pressure?  If your blood pressure tends to be on the high side, then I would suggest seeing a Cardiologist first.  He/She may have some other insight in your condition.

If your blood pressure is normally low though, then you may want to just give Florinef a try.  Be careful of lowered potassium.

I'm not at all a doctor though, just a dysautonomia patient.  I wish you much luck, and I hope you feel better soon!
Helpful - 0
314892 tn?1264623903
Thanks for your input.

My allergist was the first doctor to suggest POTS due to the tachycardia.
I saw 2 neurologists at Hopkins who said I had Migraine Associated Vertigo.
I was misdiagnosed with Meneire's Disease for 14 years.
The neuro I saw last June dismissed the Dysautonomia possibility.
The endo I see now does think it is possible.

Do I bother with an expensive Tilt Table Test with a cardiologist or just try the Florinef?
I may just try the drug first under the endo's supervision.

Thanks again!

Helpful - 0
492869 tn?1285018933
I don't have hypothyroidism, but the symptoms you describe do sound a lot like POTS.  I hope the Fludrocortisone/Florinef helps to ease your symptoms.

If you still experience these symptoms, you may want to visit a specialist.  Cardiologists, and Neurologists will likely be the most helpful.  Good luck!
Helpful - 0
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