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does trigeminal neuropathy cause facial twitching?

by worried76374, May 26, 2008 10:45PM
I've been having right sided cheek twitching for 3 months. The muscles spasm only when I smile. At rest, they do not spasm. I also suffer a burning pain deep in my right ear and on the right side of my scalp. My right eye feels heavy and the muscles seem fatigued and numb. I also experience facial numbness and tingling.

I went to a neurologist last week who diagnosed me with "trigeminal neuropathy", not to be confused with trigeminal neuralgia. I've been instructed to take gabapentin at 100mg, 2x/day.

I'm pretty scared because this twitch seems like it's around to stay. The neuro said it's not life threatening and will go away with medication.  I had a CT scan and an MRI along with a pretty detailed blook work up all normal. I am still scared this is MS, because I have read a normal MRI does not rule out a Dx of MS.

Does anyone else experience this? I am taking the meds but so far, nothing has happened. It's a pretty low dose so I may need to increase. My doctor said this happened to me because I was under severe duress, my immune system was weakened, and I possessed a "vulnerability" to be set up for what he called "The Perfect Storm."

I'd appreciate hearing from anyone with thoughts or stories to share. I'm really scared, frustrated and worried there may be something more grave happening here.

Thanks

Member Comments (1)

by kgirl40, May 26, 2008 10:52PM
To be considered MS, esp. in the face of a normal MRI, it will take repeated and separate episodes of it flaring up. I've heard it can take years to get a firm MS diagnosis, so it's probably best to not worry about what hasn't happened and see if your meds will make things better for now.
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