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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigment, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
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Skin Pigmentation/IP

by Mandi1, May 28, 2008 12:11AM
My daugher was diagnosed with  IP when she was 6 months old.  She has no sysmptons except for the rashes on her bodies.  We were told by doctors that the rashes will fade away in her adulthood.  She is now 21 years old and still has the rashes.   I am wondering if anyone knows any way of treating the discoloration.  Has anyone tried laser?
Has anyone experienced fading of the skin color over time?



Member Comments (3)

by IPIFSE, Jun 06, 2008 11:57AM
To: Mandi 1

I am the Exec. Dir of the foundation (IPIF) for IP.  I have not yet known of a case where the rashes persist into adulthood.  I would suggest you print out a They may order any number of articles from me at no charge. You might also wish to contact one of the dermatologists on the scientific advisory committee. Dr. Rhonda Schnur, e-mail: ***@****
Tel:Bus:  856 968-7255
For the bibliography please contact me by email for the updated version.
Susanne Emmerich
Exec. Director, IPIF

by shashe34, Aug 13, 2008 09:59AM
To: Mandi1
My 24 year old daughter with IP still has dark pigmentation at the tops of her thighs near the groin area.  We were always told it would fade into adulthood and has somewhat but there is still a lot of it.  That is where she had the biggest darkest spots as a child.  

by snowy87, Aug 15, 2008 05:11AM
To: skin pigmentation/ip
hiya
im 21 and was born with ip. i still have rashes and skin pigmentation on my legs. they have never faded the only time they change is if im ill n then they get worse.
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