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This patient support community is for discussions relating to lung and respiratory issues, allergies, asthma, bronchitis, colds/flu, chronic cough, COPD, cystic fibrosis, emphysema, fibrosis, lung abscess, nasal polyps, pleurisy, pneumonia, sarcoidosis, sinusitis, and tuberculosis.
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Sarcoidosis affecting other areas of the body/system

by CAA29577, May 28, 2008 11:02AM
I was diagnosed with sarcoidosis fifteen years ago. It was found out through a bronchoscopy. It was also found out, at the same time, that I had five lesions/tumors in my thoracic spine. The doctor believed that the two were linked and were the cause of the numbness I was suffering from the ribs down -- I also could not taste or smell. I was put on prednisone and took that for about a year. The symptoms did not go away, and after a year of taking the prednisone, I decided I didn't want to take it anymore. The numbness, lesions/tumors, finally stopped after about two years.

I am now suffering the same symptoms -- numbness in my feet, inner thighs, and totally from the knees down. I really don't want to be put on prednisone again due to the side effects, and I want to know are there any other treatments available now.

Any information would be greatly appreciated. Thank you for your time. I look forward to hearing from you.
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