Please help me!!!

[logan123]

I have had Hashimotoes for 11 years now. I found out at 29yrs old (big deal!!!) I had a nodule in my throat (no cancer), It was small at the time. 35yrs to 40 the nodule was growing bigger.Finally 11yrs later, the nodule(10cm by 10cm) had to come out. Still no cancer.

Total Thyroidectomy!!!!! oh what fun!!!!!
It's been three month of pure hell !!!!!  Between my Calcium levels going up and down. Then my thyroid levels were to low.Up and down, I was a pin cushion every week for blood.
My face tingles on a daily basis(mostly on the right side)
My right arm and hand are weak.Sometimes it affects the left side too. This is on a daily basis also.
Food doesn't taste the same (don't have to worry about weight gain) It tastes like metal or tinfoil.

Three months later!!!!!!!!!
Calcitrol 3x a day, Levoxill 125mcg a day, Magnesium 400 mg 1x a day
All blood levels appear to be normal!!!
I have severe muscle fatigue!!!!! they are weak when i go to bed, and when i wake up.
It's not my bed, or my sleep habits, which are fine.
I'm not over doing it!!! I'm exhausted before I get going in the morning.
I'm very active and do what i have to do to get through the day!!! But HOW DO I FIGHT THE CRONIC MUSCLE FATIGUE?
Levels are normal! Drs think I'm some nut (they don't say it but you know they think it)
Drs say you need more time!!!! ........I know my body and something isn't right!!
I am a healthy person and never sickly. Now  I just shake my head and say what the F#*#*#!!!!!!!!!
I feel like a freak!!!!
Any ideas???? I've read so much about thyroid everything, I'm all set!
Suzanne


This discussion is related to Thyroid surgery due to a goiter.

[redheadaussie]

You sound just like me, except my TT was 5 months ago! I'm up and down all over the place too. Sadly it can take up to a year before the levels are right. Too much and you go hyper, too little you go hypo , getting the balance right is not a quick thing. The medication is that it stays in your system for a week..so the dose you took last week will only start to affect you this week, then you have to wait and see how the body reacts to that, which is usually about 6 weeks before you are able to state how you feel. Sadly, Doctors don't go through it and have no understanding of  the frustration the waiting causes, but it isn't their fault.Not yours either!
    From what I know the body really doesn't like losing a major organ and will retaliate by trying to shut off for a while, hence the muscle tiredness you feel. It's not fun.
  I too am going nuts with wanting to be well again, but I just have to do what I can when I can and be on this forum to get some great support. I had undiagnosed Hashimoto's for over 15 years!
  I suggest you put up what your levels from the tests actually were, coz what Doctor's say is 'normal' is not always the case. My doc recently said I was normal witha TSH of 0.06 but 6 weeks previously told me with the exact same levels that I was Hyper..Go figure that one out!
  Hang in there, you aren't a freak but a fellow Thyroidian! (That makes you special!)
Hope that helps to make you feel a itty bit better!

[logan123]

Thankyou for your response! Paper shows that my levels are "normal"  the last time this happened (muscle fatigue). I was symptomatic(one month ago), so the Dr. tells me to double my thyroid meds for 5 days. Hey it worked once!!!!! I'm doing it again!!!!!
Hurry up and wait???!!!  two more weeks before the next blood check??????!!!!!
I can't get out of my own way!!!! you haven't given it enough time!!!!! say the Drs.
Only one problem!??? I'm not telling either Dr that I'm upping the Thyroid dose. Why bother!!!!!???? they don't listen anyway!!
We are just a bunch of cows to slaughter for Drs. There is always someone to fix. It's the follow up they just don't get.
Do they sit there and think we make this **** up?????? Ya!! we want to feel this way every F****** day of our life!!!!
The Drs I have are great reputation wise(and i like them). if it's not on paper we are freaks!!!
Thanks again for your response!
I'll keep you posted!
Suzanne