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Celiac (Sprue) Disease Community
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What are your Celiac/Gluten Symptoms?
by beentrying2quit, Jun 01, 2008 04:44PM
If you've been diagonsed with Celiacs Disease or Gluten Intollerance I would love to know what your symptoms were/are.
I've been wrestling with this for a few months now and get told different things by my two docs. I've been to my GI doc who did the Celiac Panel test which came back negative. I've seen my family doc who also did the blood test that came back negative. Below are symptoms I get after eating a hamburger.
Gas & bloating
severe abdominal pain/cramps
Tingling in both hands and feet
Anxiety that cannot be explained. I turn into a different person
Constipation and direaha both
I put in an 18 hour day yesterday and when it came time to stop for lunch at 1pm the only thing around was a McDonalds. I had to make a choice...risk the above problems or wait another 6 hours before getting home. Since I had not eaten since 4am that morning I decided to risk it...boy have I paid the price. There must be some kind of substance in McDonalds food that causes me to react this way.
Anyone have the same problems?
I've been wrestling with this for a few months now and get told different things by my two docs. I've been to my GI doc who did the Celiac Panel test which came back negative. I've seen my family doc who also did the blood test that came back negative. Below are symptoms I get after eating a hamburger.
Gas & bloating
severe abdominal pain/cramps
Tingling in both hands and feet
Anxiety that cannot be explained. I turn into a different person
Constipation and direaha both
I put in an 18 hour day yesterday and when it came time to stop for lunch at 1pm the only thing around was a McDonalds. I had to make a choice...risk the above problems or wait another 6 hours before getting home. Since I had not eaten since 4am that morning I decided to risk it...boy have I paid the price. There must be some kind of substance in McDonalds food that causes me to react this way.
Anyone have the same problems?
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Heartburn
Some intestinal irritation.
Definitely affects the immune system. Get sick much easier.
The longer I am away from it. If I accidentally ingest any, the reactions seem much stronger and quicker than before.
I had a positive test for gluten sensitivity. I don't think I'm celiac but have not been tested. No real reason to. The treatment is the same....Stay away from gluten.
He was diagnosed via fecal antibody test along with genetic (allele) testing. Best thing he ever did.
Fogginess of the brain
Insatiable hunger + seemingly 'active' metabolism (couldn't put on weight)
Mild bloating
Moderate to Severe heart burn (diagnosed as acid reflux)
Lactose Intolerance (Celiac Disease and Lactose Intolerance go hand in hand)
Headaches and SEVERE migraines
No menses (until I went gluten free)
Severe Anemia/Fainting
Vomiting, usually an hour or so after eating--ex. when bending over to tie my shoes or jumping on a trampoline. If I sat still after eating I usually wouldn't vomit, but I would feel as if I was about to.
Diarrhea/very foul smelling feces
Osteoporosis, which was diagnosed with bone density scan. Many, many broken bones and fractures.
Abnormal bruising/bleeding... Later discovered to be a result of a vitamin K deficiency.
Because of these symptoms/complications I experienced as a person living with Celiac Disease my doctor (not anymore!!!) thought I had leukemia + an eating disorder. It wasn't until I found a new doctor that took my symptoms seriously and was able to piece together what was wrong that I began to get my health in order. Finding a good doctor who is experienced with Celiac patients will help tremendously!
Hope this was somehow useful.