Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Autoimmune Disorders Community
This is an un-mediated Patient-to-Patient Forum only. This forum is for questions and support regarding Autoimmune topics such as: Acute disseminated encephalomyelitis (ADEM), Addison's disease, Ankylosing spondylitis, Antiphospholipid antibody syndrome (APS), Aplastic anemia, Autoimmune hepatitis, Autoimmune Oophoritis, Celiac disease, Crohn's disease, Diabetes mellitus type 1, Gestational pemphigoid, Goodpasture's syndrome, Graves' disease, Guillain-Barré syndrome (GBS), Hashimoto's disease, Idiopathic thrombocytopenic purpura, Kawasaki's Disease,
Lupus erythematosus, Multiple sclerosis, Myasthenia gravis, Opsoclonus myoclonus syndrome (OMS), Optic neuritis, Ord's Pemphigus, Pernicious anemia, Polyarthritis, Primary biliary cirrhosis, Rheumatoid arthritis, Reiter's syndrome, Sjögren's syndrome, Takayasu's arteritis, Temporal arteritis, Warm autoimmune hemolytic anemia, Wegener's granulomatosis
CONFUSED
by woodsey, Jun 01, 2008 05:32PM
HELLO I AM NEW HERE. REALLY FRUSTRATED. I WONDERED IF ANYONE OUT THERE SUFFERES WITH REITERS SYNDROME. I HAVE SEVERE DIAHORREA, ACHING JOINTS, CONJUNCTIVITUS IN BOTH EYES, OCCASIONAL PROBLEMS WITH URINATION [PAIN]. MY DOCTOR SEEMS TO POO POO EVERYTIME I ASK, I AM HLA-B27 POSITIVE AS WELL. HOPE SOMEONE CAN SHED LIGHT ON MY PROBLEM. HUGS XX
Post Comment
Last night they started me on a drug called Lyrica, which I see is approved by the FDA to treat Fybromyalgia. Apparently it works on the nervous system part of the brain and not on the pain system, so I'm hoping heart and soul that it will work on me.
As for advice, I'd just treat the symptoms as they pop up, like eye gel for the conjunctivitis. I know about the weeing thing, I often struggle with that, but just sit and wait patiently and it starts eventually, not a very pleasant thing especially when you need to go badly and nothing happens, it brings on a bit of a panic, but once things get flowing, the relief is brilliant.
I'm sorry I can't offer you any really hopeful or helpful advice, but Reiters is a dodgy disease, it's not even called that anymore, it is now called Reactive Arthritis. How did you get it? I had systemic salmonella poisoning and that is how I ended up with it. I'm in hospital now because they think it may be active again and are doing loads of cultures to try find where its hiding. Hopefully they are negative cause the thought of the bacteria just lurking and waiting to strike really gives me the creeps.
Look up Reactive Arthritis, I'm sure you will find lots of info which should be of help to you. Good luck and I hope you get well soon.