Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Hi again, PlatelletGal. The web site is wonderful forthe "+" and "-" interperation. However, not for the numbers themselves. Do you know of resource for interperting the number values?
Odd, but my sister's EBV test results uses a different number ing (value) system than mine does. Our Doctor's used different labs in different states.
██ Uric Acid --- "Uric acid levels in CFIDS patientsKidney diet - dialysis patients are among the lowest I've ever measured, in all of medicine". --- Dr. Paul Cheney
source: http://www.dfwcfids.org/medical/cheney/heart04.part2b.htm --- but also see:
Dee52 Female, 53 years Sunny - FL Member since Nov 2007
Mood: Dee52 waiting for surgeon to get off vacation for biopsy. If it's cancer they are doing surgery right away. I can't have radiation on my left breast because that's where my cancer was before. Looks like a nice boob job on the way.LOL or cry. Journal Entry: "
"When you feel like giving up, reme..." [Read]
momeluv Female, 49 years Sunny Southern - CA Member since Mar 2008
Mood: momeluv is sending a bushel & peck, a bushel & a peck & a hug around the neck!!! Is that how that goes? Oh well, y'all know what I mean! ((giggles)) I love Y'all! Sweet dream to those getting ready to cozy up for the night. Have a beautiful day to those just getting srtarted! Love to one & all!! Thanx for all the prayers & good wishes! Love to Yuns!!!!! Journal Entry: "
I've learned.... That..." [Read]
is sending a bushel & peck, a bushel & a peck & a hug aro...
This link should be able to help you interpret your results:
http://www.labtestsonline.org/understanding/analytes/ebv/test.html
Best,
PlateletGal
Odd, but my sister's EBV test results uses a different number ing (value) system than mine does. Our Doctor's used different labs in different states.
Unfortunately, I don't believe physicians have a guide to interpret EBV titers. = (
The lab that did your sister's testing must have used a different method of testing.
These are the labs that many CFS patients are failing. I compiled this information and posted it on my website because I couldn't find all of this on just one website. Its a shame that the CDC hasn't done more for CFS patients:
██ T3 REVERSE -- "The mix of treatments needed varies from patient to patient. There are some abnormalities that are common. For instance, close to 100% of individuals with these syndromes have low thyroid. This is, however, usually not picked up on the standard blood tests because the TSH is not elevated in these individuals due to pituitary dysfunction. Many of these individuals will also have high levels of the anti-thyroid reverse T3, which is usually not measured on standard blood tests. In addition, the majority of individuals can also have a thyroid receptor resistance that is not detected on the blood tests. Consequently, thyroid treatment, especially with timed release T3, is effective for many patients. T4 preparations (inactive thyroid) such as Synthroid and Levoxyl do not work well for these conditions."
Kent Holtorf, M.D. --- link to article: http://www.immunesupport.com/library/showarticle.cfm/id/4320
██ ANA -- "Up to 25% of ME/CFS patients have an abnormal ANA" --- Dr. David Bell link: http://www.davidsbell.com/PrintLynNewsV4N2.htm
██ Uric Acid --- "Uric acid levels in CFIDS patients are among the lowest I've ever measured, in all of medicine". --- Dr. Paul Cheney
source: http://www.dfwcfids.org/medical/cheney/heart04.part2b.htm --- but also see:
http://groups.msn.com/Neuro-ImmuneSupport/cfidsresearch.msnw?action=get_message&mview=0&ID_Message=395&LastModified=4675644569616562305
██ A.M. Cortisol Level --- source: http://phoenix-cfs.org/Hypocortisolism%20in%20CFS.htm and Evaluating Salivary Cortisol Levels in CFS Patients
██ CD4 Count --- "We have 155 cases with random CD4 counts below 500, 62 cases below 400, 21 below 300 and 3 below 200." --- Dr. Paul Cheney
Cheney also says, "some of my sickest patients have elevated CD4 counts" Source: http://www.immunesupport.com/92fal007.htm
source: http://www.ncf-net.org/conference/CheneyTestimony.htm
██ MRI Scan --- "Half have abnormal MRI scans" --- Dr. Paul Cheney
source: http://www.ncf-net.org/conference/CheneyTestimony.htm
"Cranial MRI will show small T2 weighted high intensity lesions in 80% of cases" ---- Dr. Charles Lapp
source: http://www.cfstreatment.info/for_your_doctor.htm
██ SPECT Scan --- "80% have abnormal SPECT scans" --- Dr. Paul Cheney
source: http://www.ncf-net.org/conference/CheneyTestimony.htm
██ EEG --- "95% have abnormal cognitive evoked EEG brain maps" --- Dr. Paul Cheney
source: http://www.ncf-net.org/conference/CheneyTestimony.htm
██ Sleep Study http://www.cfids.org/archives/2002rr/2002-rr4-article01.asp
██ Tilt Testing to Rule out POTS (postural orthostatic tachycardia syndrome) --- http://www.cfids.org/about-cfids/orthostatic-intolerance.asp?view=print
██ DEXA Scan --- source: http://phoenix-cfs.org/The%20SITE/OsteopeniaCFS03.htm
██ Holter Test (heart) "All 60 patients with CFS showed repetitively flat to inverted T waves alternating with normal T waves"
http://www.chestjournal.org/cgi/content/abstract/104/5/1417
██ Viral Testing --- EBV titer, CMV titer, HHV-6 titer (best methology & lab: http://www.drpodell.org/chronic_fatigue_syndrome_hhv6.shtml ) You can also visit the CFIDS Association of America's page on viruses that play a role in CFS patients.
My latest EBV results:
Early Antigen Ab,IgG 300 (climbing from 142 1.5 yrs ago)
Ab VCa IgG 3462 (up from 2761 1.5 yrs ago)(had gone down once)
Nuclear Ab IgG 2326 (up from 1114 1.5 yrs ago)(had gone down twice)
Some labs use 0-.9 as a scale.
Anyone have elevated Neutrophilis count on their blood test when their EBV numbers are high? Mine are up for the first time since this whole thing started.
Having reported all these terrible numbers, let me encourage others by saying that I can "create" a good day by pacing myself and focusing on remaining quiet and calm. I have also found that the more time I spend on the computer, on the phone, or watching TV makes my fatigue worse. Cool, calm and breathing deep.