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Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
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Heat Sensitivity

by halbashes, Jun 15, 2008 12:09PM
How is everyone dealing with the summertime heat?  Can anyone offer some ideas for staying cool, and keeping our autonomic systems from rebelling?

Here are some of my ideas:
- Pedialyte freeze pops for staying cool, and hydrated.
- Taking walks in air conditioned stores, rather than outside in the heat.
- Using a refillable spray bottle with a fan for keeping cool.
Member Comments (3)

by dolfnlvr, Jun 17, 2008 09:19AM
This may sound "extreme" but if you did need to be out for a long period of time in the heat and you were concerned about the temperature affecting your symptoms you could use one of those "camel coolers" that bike riders use during long rides.  They are the size of very tiny backpacks.  You fill them with water and refrigerate or freeze them.  There is a small straw that flips over your shoulder to allow intake of water, but you don't have to use that if you don't need it.  The cool compress on your back should help regulate your body temperature while you are outside in the heat.  

by DragonTU84, Jul 17, 2008 12:58PM
I always bring a cold water or something cold to drink, with ice in it. Esp. under such extreme hot conditions here, you kind of have to.

It is weird. Once I adjust to the cooler temps. indoors,. I get cold and sometimes need a jacket, zip-up sweatshirt, or cardigan. Yet if I am outside long enough, I get overly hot and sweat profusely. :-\

by DragonTU84, Jul 17, 2008 01:00PM
Oh yeah, sorry for the double-post, but I find that if I my extremities are cold, the rest of my body feels cold. Finding ways to keep them warm helps to keep the rest of my body warmer as well. The same goes for heat. Cooling off my feet or hands helps cool me off. But I notice it more with cold temps.
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