Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Chiari Malformation Community
This patient support community is for discussions relating to Arnold Chiari Malformation and Living with Chiari Malformation.
chiari
by yummylikeme, Jun 16, 2008 09:13AM
i have a chiari i am in so much pain all day everyday the older i get the more pain .i just like to fine someone that is in my shoe . knowone understand how i feel my family is trying to fine support for thier mom i have surgery on this thursday has anyone had the surgery done i would like to know how it went . we all need to get to together and do walk to rise money to help people like us thier is even little guys out thier as will . but i would like to talk to someone for support would like to fine answer for this
Member Comments (3)
by (Not so) Spunky, Jun 18, 2008 02:28PM
I had my surgery on May 20th- I will not lie- IT HURTS!! The first 24-48 hours are the worst, but the it gets better. I developed a CSF leak that was actually worse than the surgery, and I will pray for you that that doesn't happen to you. I am now almost 1 month post op, and I feel pretty good. I am a stay at home mom of 4, and if the kids get out of hand, I do get headaches, but if I can remain "at peace", I'm fine. I found the hardest and most painful(other than the 2 days after surgery) to be neck stiffness. Ask for a muscle relaxer if they don't offer you one. It will be a god-send! I still wake up hurting from the stiffness every morning, but it's getting better. Mostly because I found a comfortable sleeping position. Stay strong- it will get better- and feel free to PM me when you're up to it. Good luck!
by dieselann, Jul 21, 2008 09:20PM
To: yummylikeme
Ihave had ACM for 25 years. I am 49. 13 years ago I had decopression surgery and it was the best thing ever. I was 27 days flat on my back at home but I would do it again if I had too.
by 4XShuntfailure, Jul 28, 2008 11:13PM
To: dieselann
So you really would do it all over again???? Because of all the sites I've seen and read, you are the first to say so!!! I've been dragging my feet because I'm a 4 time shunt surgery failure who needs decompression surgery and I'm scared to death to go back under the knife again because everything I read from others seems to either be a "temporary fix" or "unsuccessful" so I hesitate to go through it all for NOT??? I've used up all of my sick and vacation time over last summer/fall during my shunt surgeries so I don't have much time built back up. I'm nervous to have to go back out again. I realize we're all different and there are NO guarantees but - WOW - I'd sure like to hear a few more SUCCESS stories out there...!!!
Post Comment
