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least wanted sx

by headshop, Jun 16, 2008 11:52AM
I will start tx soon, and I have been thinking a little, (can't help it, usually thinking about now, today). I am not sure yet, but I think the least wanted if any sx for me while on treatment would be irritability! I think this also would be rooted in depression.
I am interested in what sx others have a real tough time dealing with.
Member Comments (26)

by jdwithhcv, Jun 16, 2008 12:05PM
To: headshop
I'm not irritable.  I'm NOT damnit!!!  Are you listening, I said I'm NOT IRRITABLE!

No really, 7 weeks to go (ok 6 and a half) and no anti-depressants.  Just occasional ativan for anxiety but no depression or irritability for this gal.

I have the hardest time with the anemia - it just wiped me out around week 6 and I've been fighting it off and on (mostly on) ever since.  I can't work because of it and that's torture.  Between anemia and brain fog it would be a big mistake for me to practice law, if I had the strength to make it to lower Manhattan to the courthouse without passing out on the NYC subway and getting rolled by some skel.

So my big gripes are exhaustion from the anemia and the bad case of the stupids from the brain fog.

But keep the faith, this stuff doesn't happen to everyone.  Lots of people have few to no sx and I'm gonna nominate you to be one of that group.  Its a wild ride but if I can get SVR its been worth it.  Good luck and God bless.

jd

by theeagle, Jun 16, 2008 12:40PM
To: Headshop
The very worst part of tx for me (I was in clinical trial at mayo in '96) was the total loss of appetite............

by headshop, Jun 16, 2008 12:41PM
To: jd
Thanks, sounds like a sense of humor and humility will go a long way towards dealing with all of this.
Thanks for the nomination, I have already got brain fog, friends might say I always will.
Anemic Brain Fog on the NYC subway, priceless!

Peace and Health
Head

by rita863, Jun 16, 2008 12:44PM
Jd ~ is great!!!!

Sides are different for all of us.  My biggest side is the rash from riba,  I have also had some mouth sores.  I have never had flue like syptoms or fever or chills.  Tired at times and Brain Fog at times.  As a whole it hasnt been horrible.  With that being said, its not a picnic either.  There are good weeks and bad weeks.  The past two weeks have been good for me.  I have mild depressions and only at times.  I do work full time.  There have been times when i needed to take off, either because i was just wiped out. or the rash was totally out of control.

Positive attittude helps!!!
This Forum helps~

good luck

peace
rita

by FlGuy, Jun 16, 2008 12:57PM
To: head
Sleep.  Even with sleep aids, the effects of months of shallow rest mounts up.  To sink into a solid, deep restfull sleep was always missed.  I think it had a part in some of the irritability and mental dullness. I was about as sharp as a marshmallow.

by meki, Jun 16, 2008 01:46PM
Insomnia, Brain FOG --- no BRAIN PEA SOUP...

And the sense that you've forgotten something --- and you'll never find it.

TX changes you. Completely.

I don't know how to describe it to you - but it changes you.

But for me the worst were the aches and pains... My bones, my muscles, my tendons and connective tissues all hurt --- and they still do.

Have to admit tho --- the doctor I am currently seeing has finally found something that actually works! I'm amazed - nothing has worked before - I felt like crying this morning when I woke up without feeling like I was dying...

This week I have played badmitton - had wild whoopie with the partner... (not in the Mall, of course -- that's next week)... Stood up at work to type ---- and actually did laundry and dishes... and played in the band... It's been 2 years since I could do that. And the world feels a lot better today.

Meki

by charm27, Jun 16, 2008 02:18PM
feeling like my legs are in quicksand, brain fog, extreme fatigue and mood swings.
Its also difficult for me to sleep more than 3-4 hours even with a sleep  aid no I dont take them anymore.

When I wake up in  the morning I feel my worst.

Hopefully you will have easy sx. Best of luck in your journey.

by headshop, Jun 16, 2008 02:31PM
To: all
aches, pains, fatigue have that with chronic HCV, not as bad with the summer heat. I have not been able to sleep more than 3-4 hours for awhile. My pcp, only recommends over the counter medicines and sleep aids(tylenol PM) first.I lost my appetite and lost about 25lbs, even though that was during detox and not using or abusing for over 14 months.
I am hungry all the time now, and starting to eat a lot, mostly good food.
Those that lost your appetite did you lose a lot of weight?

You know what I can't really get out of my head, and I may be off base here, but I don't feel my pcp, main contact has much of a sense of humor. I need that.

by rita863, Jun 16, 2008 02:37PM
thats why i am here!!!!  i can always make you laugh!


i call my doc gloom and doom!

peace
rita

by headshop, Jun 16, 2008 03:32PM
To: rita
Oh no! According to Dr. Scwhartz, this is really serious, :-) The office staff does seem pretty light hearted, especially the office manager. Dr Scwartz though is the one that when I was telling her about my continual side pain after my bx, said it is your stomach, we only do hcv. If I had been on my game I would have found that funny.
Of course I don't know her background and what or who she has seen, we all have issues and are recovering from something.

by marsfreek, Jun 16, 2008 04:14PM
To: all
My favorites are 1 the bone pain and 2 the hair thingy....

by CMcH, Jun 17, 2008 01:05AM
To: Headshop
The Riba rash is driving me crazy right now. It feels like I have a chemical burn on my chest. I have turned into a vampire and can't stand the sun hitting my skin or in m eye's. I live in CA and love the outdoors so this is going to be a difficult summer with the kids. I need to find light wt. long sleeve clothing that feels good on my skin