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Harlequin Syndrome, etc
by melipnyc, Jun 18, 2008 10:22AM
Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare condition. I know that harlequin syndrome can have many causes, mine appears to be a lesion on the T1 area of my spine. I'd like to know if others that have harlequin syndrome have other neurological problems? I have been diagnosed with inappropriate sinus tacchycardia and hypotension. On occasion, I have chest pain, fatigue, and shortness of breath, and weakness in my legs while climbing stairs in addition to the other symptoms related to the harlequin. I'm 34 years old, female, and trained as an athlete. Does any of this sound familiar to anyone?
Thanks
Thanks
Member Comments (3)
by melipnyc, Jun 19, 2008 06:28AM
anyone?
by maltesesd, Jul 27, 2008 08:33PM
To: melipnyc
I have recently been diagnosed with Harlequin Syndrome as well. The symptoms started after I mowed the lawn in the heat last summer. I actually brought some info to the Neuro. about this and she had never heard of it. She really didn't know what tests to do so she did an MRI of the brain thinking it might be a tumor, but found nothing unusual. I recently read about the possibility of it being a lesion in the spine. I'm 41, female, and have worked out for years. Other symptoms that have started and may or may not be related are: easily overheating and becoming weak, weakness in my legs when climbing stairs. I emailed Genetic and Rare Diseases Information Center, GARD,and it took awhile, but they did send me some info.
by jupiterx, Sep 17, 2008 09:42AM
To: melipnyc
YES! I have never been diagnosed and just recently started researching what was causing my face to turn red on just one side and I sweat profusely on that side as well. I'm thinking about going to a Neurologist to see why this is happening to me. I've had problems with my neck and have had my neck adjusted several times but this was a long time ago. I do get frequent headaches and dizziness as well. Hopefully when I see the doc I'll be able to find out WHY this happens. It causes me to be miserable when it's hot or I get overheated.
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