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Thyroid Disorders Community
This patient support community is for discussions relating to thyroid issues, goiter, Graves disease, Hashimoto's Thyroiditis, Human Growth Hormone (HGH), hyperthyroid, hypothyroid, metabolism, pituitary gland, cancers, thyroiditis, and thyroid Stimulating Hormone (TSH).
Hashimoto's and muscle problems
by Wr1te1, Jun 18, 2008 01:04PM
I've had muscle & joint pain for many years & knew it was my thryoid but only recently have finally been diagnosed with Hashimoto's Thyroiditis. I now also have hypothyroidism. I've had back pain for many years which is why I became a personal trainer & fitness instructor to fight the pain. I am 36. In the last so many years the pain was not just in my back but in ALL my muscles & joints all over my body including my intercostals, my skull, my ribs, feet, along my spine, you name it. I hurt all the time & it is very hard anymore for me to teach classes with a smile on my face trying to hide my constant pain. No matter where you can touch me on my body there will be a knot... My heart also hurts, either muscle pain in my chest near or directly around my heart, or muscle spasms in my back so severe that it goes through my body & literally hurts in my heart. My endo said that my constant fatigue & muscle problems couldn't be just from my Hashimoto's, that I probably have another problem. My regular doctor is leaning toward fibromyalgia. But I am at a standstill for now till my husband gets insurance again & I can go to a rheumatologist(sp?). We have not got my thyroid levels under control yet. Sometimes it hurts so bad in my side (my flank area) and I'm not sure if it's muscle or could be an organ. I even get spasms in my bladder! Can Hasimoto's cause this severe form of muscle pain all over my body?? I'm taking muscle relaxants and anit-inflammatorys twice a day with no relief. And also my endo suspected that I could have EBV virus & tested me for that -- I had mono at 15. My EBV Ab VCA, IgG level was 2786 (normal is 0-99) and my EBV Nuclear Antigen Ab, IgG level was 1104 (normal is 0-99). Does this mean anything?? No doctor is able to answer that for me nor able to give me any other answers or help. Please Help! This pain is literally killing me! Also my husband wants to have a baby so bad. Do you think it could ever be safe for me??
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WELCOME TO THE COMMUNITY
Finally I found a good Doctor that really listened to me-I kept telling him I was depressed because I was in pain not the other way around. Anyway I have fibromyalgia
and have been trying different meds to help cope with the pain. You might look it up on the internet because pain is not the only symptom of fibro-it has many, many other symptoms.
I also read that there is an association between hypothyroidism and fibro-I am not sure how true that is but I am trying to research it to find any answers that I can get.
Mary Ann
EBV Nuclear Antigen Ab, IgG level can persist all your life (only detected 3-6 weeks after symptoms, you had them at 15).
EBV Ab VCA, IgG : A high amount in this test means that you either are currently having or have had mono. If you're sure you already have had mono in the past, this is likely normal. You might also want to look at/have tested other blood levels, such as a complete blood cell count, which gives an overall picture of your immune system.
If not sure about EBV in the past should be tested EBV Ab VCA, IgM (recent infection).
Fibromyalgia, you only have the diagnostic if you rule out other autoimmune diseases. Fibromyalgia can be associated with other autoimune diseases, like Hashimoto. Is common people that have an autoimmune disease have another one.
And yes I do have many other symptoms as well. The ones I have listed are the most troublesome. And so far fibromyalgia seems highly likely. My endo did say if you have one autoimmune disease such as Hashimoto's it is very likely you have another. And I have read that hypothyroidism can be linked to fibro... but good Lord I do not want it! And I truly don't think EBV or mono is part of the picture either.
Good luck on your own search. You're welcome to keep in contact with me if you'd like! I'm still looking for a good doctor who will listen to me & try to help... and I have not found he or she yet. But I will!
Yes the endo did tell me one autoimmune disease usually comes with another. The EBV testing was ran in Jan. 08 & the last time I had a complete blood count was Oct. 07. My bloodwork looked fine in October, but I know that can change quickly & I'm due more testing... as soon as my new insurance goes into effect...
Thanks so much for your help!