Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Dysautonomia (Autonomic Dysfunction) Community
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
Does anyone else have HyperAdrenergic POTS?
by rhonda1017, Jun 19, 2008 12:19AM
Hi,
I apreciate any insight or help with this question. I am a 45 yr. old F that worked full-time as a kindergarten teacher, was active in my community, my church, and raising 2 teenagers as of February 08. Then I got a virus and was in the hospital. After the virus, my heart constantly raced. At rest it was 100 beats per min. If I moved or walked it went as high as 197 beats per min. I was out of breath and had tremors extremely bad. My blood pressure also goes up with any kind of movement. I was in and out of hospitals for 7 weeks. I wore a heart monitor for 24 hrs., had an echiocariagram, EKG, Stress Test, and then a Tilt Table Test. I have now been diagnosed with HyperAdrenergic POTS(postural orthostatic tachycardia syndrome). Everything I have read about it, says that this kind of POTS is genetically based and comes on gradual. Mine did not. It was overnight. I am still having difficulties even with the medications. Today after 5 minutes of walking & resting at therapy my blood pressure was 187/126 and my heart rate was 160. Then I develop complete body tremors and if I don't sit down, I fall down. I would greatly appreciate any assistance. Thank you so much.
I apreciate any insight or help with this question. I am a 45 yr. old F that worked full-time as a kindergarten teacher, was active in my community, my church, and raising 2 teenagers as of February 08. Then I got a virus and was in the hospital. After the virus, my heart constantly raced. At rest it was 100 beats per min. If I moved or walked it went as high as 197 beats per min. I was out of breath and had tremors extremely bad. My blood pressure also goes up with any kind of movement. I was in and out of hospitals for 7 weeks. I wore a heart monitor for 24 hrs., had an echiocariagram, EKG, Stress Test, and then a Tilt Table Test. I have now been diagnosed with HyperAdrenergic POTS(postural orthostatic tachycardia syndrome). Everything I have read about it, says that this kind of POTS is genetically based and comes on gradual. Mine did not. It was overnight. I am still having difficulties even with the medications. Today after 5 minutes of walking & resting at therapy my blood pressure was 187/126 and my heart rate was 160. Then I develop complete body tremors and if I don't sit down, I fall down. I would greatly appreciate any assistance. Thank you so much.
I guess what you have is pots the underlying cause is the hyperadrenals,it makes sense.Your body went into fight or flight mode when you had the virus and it cant calm down. I should have been a doctor. I was so opposed to starting the cymbalta I cant believe how it has helped. I will write you more sites if I find them. What other symptoms do you have?
Thanks for your replies. You asked what other symptoms I had. I have tingling in both arms, legs, feet, and hands. My left-side is much worse then my right side. When I am trying to do things, like fold clothes or cook supper or even hold a phone, my left limbs will go numb and sometimes my right ones will too. When I am walking, I will have sweat dripping from my head and neck, but the rest of my body has goosebumps and I am shivering. When the therapist felt my head and then by body, she said it was about a 20 degree difference. I have severe tremors. It started out just in my hands and now has traveled throughout my body. I also get body twitches. When I am trying to sleep or rest, different parts of my body will just twitch severely. Sometimes, my arm will fly up into the air, other times it might be my whole body and I shake the bed. I have ringing in the ears and sometimes have trouble hearing for 2-3 minutes. It's like everyone is talking far, far away. I many other symptoms, but I don't want to take all of your time. The doctor has me on 60 mg. of Cymbalta, .04 mg. of Clonidine, and 1 mg of Xanex at bedtime to help me sleep. I did not have high blood pressure until the POTS. I used to have a blood pressure of 117/68. I have tried 4 Beta-Blockers and all of them have put me in the hospital with heart attack symptoms, the last one by ambulance. It took 3 nitro pills and a nitro drip to bring me out of the last one. The ones I have used were: Coreg, Propanolol, Tenormin, & Lopressor. So, needless to say, I am a leery of Beta-Blockers at this point. I appreciate all of your support and help in this matter. Thanks. Rhonda
I have lost about 40 pounds since I have been sick. I have trouble eating and am not hungry. I make myself eat at least one meal a day. I think it's the medication that makes me feel full all of the time. I didn't feel like this until after I started taking the meds. So, I guess I have lost a lot of weight since February, but prior to that, no.
I looked up Addison's Disease and I don't think that's what I have. I don't have many of the symptoms related to it. I have high blood pressure and constipation. I also had an adrenal gland function test done in March and it came back normal. Thanks for the info. though. It gave me a place to look.