do i have lupus,major organ probs?

[k28]

ok,i have been(sick)since i was 12 and im 21 male.very tired bad aches legs are worse.urine problems,fast and hard heart beat,short of breath,dizzyness almost passing out,lyphm notes swelled,swelling in legs and around testical area,leg and hands tingle,metal problems depression anxiety.rash on cheeks and nose(9 years)abdominal pain constipation,ear and neck pain,neck stiffness headaches,enlarged prostate.had some test high protein and something about bloodcells.very miserable,does this sound like lupus?thanks

[LZFreedom]

K you have a lot going on! You did describe some symptoms that are similar to lupus.
I have rheumatoid arthritis symptoms associated with discoid lupus, fatigue (REAL Fatigue ~ like Gumby after 90 seconds in the microwave Fatigue), depression (which is associated with lupus also.... or probably with many other medical diagnosis), anxiety may also be a symptom of just a bunch of things going on medically ~ heck, anyone would have anxiety dealing with all of this at once!!! I saw the epiditimitis on your other post also ~ but no mention of a medical appointment! Have you found a doctor? The epiditimitis and prostate, swelling in the extremities, and perhaps the headaches too, may be relieved somewhat with an anti-inflammant (which I only use for initial relief ~ usually with ibuprofen, if I use it for headaches, I get rebound headaches; dr says they 'bounce back' because the anti-inflammant properties in the ibuprofen wear off and the headache comes back, so it's like a yo-yo ~ BUT you may get some initial relief with your aches and pains!!) My ex-husband treated his epiditimitis with ice packs; uncomfortable I know... but the ice, even on the wrist, knee, or back of the neck (for headaches) brings more blood to the direct area where the ice is, thereby bringing more oxygenated cells and promoting healing.
What does the rash on your face and nose look like? I have discoid lupus. Tho I've not seen this very often, lupus is often first recognized by a 'mask like' rash on the face with redness going down the neck also.
Have you served in the Military, or been overseas in the past few years?
I had a rare disease in 1997 that first surfaced with the lymph nodes being enlarged, and not responding to antibiotics. I had night sweats and severe fatigue for a couple of years; a very difficult time for me ~ so my heart goes out to you! It does sound like you may want to avoid sugars or simple carbohydrates; at least if you have them, try to always eat foods high in protein at the same time so your blood sugar levels aren't all over the board, up and down. Keep coming back here and asking questions! There's lots of good support here, and A Lot of People who know more than I do! Peace & Respect ~ Woshi

[k28]

thanks you for your answer,the rash is on my cheeks nose mainly,but also i eyebrows upper lip and chin.i use fluocinolone and really helps.it's kindof like a sunburn(closest thing i can think of).i've had it since i was 12 and is bad without med.and i do the same  with the head/neck aches.

i stopped sugar,only water lots of it or i dehydrate doing nothing,and foods easy to digest.i have some other symtoms also,it seemes i get more every month like vison memory problems.i did have lupus test and they said it was negative but didn't say what was or what they tested.and now are going to send me to a specialist but i lost my insurance.i still feel i have lupus,or something very close.some people said i have cfids.thanks

[zmombomb]

Sounds like a mixture of anemia of some kind, with an autoimmune problem.  I also see the possibility of Epstein Barr Virus (Mono type stuff).  the rash on the face HAS TO BE lupus.  And that's crazy that your blood came up negative for lupus.  Have the doc send you to a rheumatologist and a genetecist (sp).  Also, check for lead poisoning!  

[k28]

i was thinking about anemia to,and i've also been having light colored flat and sometimes floating stools.and i was sent to a neuroligist,i think it was for my head and nerves exc.and he said the two nerves in my neck,or back of head where inflammed and called it something else.

i haven't got to a rheum. because of waiting list and now and not sure when i can now because of insurance,is a visit expensive?also would the nerves and stool changes have anything to do with the other symptoms?and when i did the lupus test i didn't have any protein blood cells exc that day that i had been having.

i also got a steroid shot which seemed to make me feel a little better,it helped my vison and arthitis,but mainly helped the fatigue.thanks

[k28]

i have been taking trileptal 600mg. 4 times a day for 9 years and just read the side effects which where very bad about 100 of them one of the incuding lupus!so i've stopped it for two weeks now and still feel alfuw but some things have gotten a little better.but i did have probs before just not like this.

could this be part of my problem?