Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Neurology Community
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
12 years after brainstem epidermoid cyst removed
by squeemy, Jun 20, 2008 07:14PM
Capsule left on cranial nerves. Due to unsuccessful CSF repair 3 wks after first neurosurgery(despite lumbar drain for several days,)I dealt with intense pressure headaches for approx. 18 months until CSF finally stopped leaking. I can't help thinking although my neurosurgeon says my MRI looks fine..no regrowth, I keep wondering...
..what role intense pressure x 18 mo.may have had on my entire brain (while leak was healing.)
..what role the lesions/scar tissue that remain on cranial nerves have on my numerous symptoms?
..why pituitary &/or hypothalmus are now abnormal & being evaluated yearly?
..why I have developed Central Sleep Apnea in the past 3 years?
..why I still have intense pelvic pain (endometriosis stage 4) despite hysterectomy & removal of rt. ovary & most of left ovary?
..why the endo has not been helped by different trials of Lupron Depot--most recently since Oct/07 treated with daily Femara, Progesterone every other day, monthly lupron shots (now have 8 monthly shots)..and am still is just as much pain (feels like a really bad period or early/mid labour!)
..2 summers ago heart rate dropped to the 40's x 2 months..full cardiac work-up as heart rate began to improve & told that my heart is not the problem & it is "likely due to brainstem" by Electro-Physiologist/Cardiologist.
..other times since before the tumor removal & to this day...I have episodes that may last days, to several weeks where I feel like somebody is sitting on my chest & I am extremely fatigued..recent exam revealed normal sinus rhythm, & "likely due to brainstem history" by local ER staff. When this happens it is 24/7 & when it goes away it is gone until the next time. Although I do suffer from anxiety & depression, both are well controlled & I am not anxious when this chest pain happens as I know it will eventually go away.
..Although I have a team of great doctors, I need to know if there is anything that can be done to stop all these neuro symptoms from developing &/or continuing. I am in constant pain, go from my chair to my bed, very fatigued, have my cold packs & hot packs plus pain medication & am still in excruitiating pain most of the time.
..THESE ARE MY DAUGHTER'S NEURO THOUGHTS & I AM HER MOTHER SENDING THIS TO YOU TO SEE IF ANYONE OUT THERE WOULD BE ABLE TO HELP IN SOME WAY..THANK YOU.
This discussion is related to condition after craniotomy/spastic.
..what role intense pressure x 18 mo.may have had on my entire brain (while leak was healing.)
..what role the lesions/scar tissue that remain on cranial nerves have on my numerous symptoms?
..why pituitary &/or hypothalmus are now abnormal & being evaluated yearly?
..why I have developed Central Sleep Apnea in the past 3 years?
..why I still have intense pelvic pain (endometriosis stage 4) despite hysterectomy & removal of rt. ovary & most of left ovary?
..why the endo has not been helped by different trials of Lupron Depot--most recently since Oct/07 treated with daily Femara, Progesterone every other day, monthly lupron shots (now have 8 monthly shots)..and am still is just as much pain (feels like a really bad period or early/mid labour!)
..2 summers ago heart rate dropped to the 40's x 2 months..full cardiac work-up as heart rate began to improve & told that my heart is not the problem & it is "likely due to brainstem" by Electro-Physiologist/Cardiologist.
..other times since before the tumor removal & to this day...I have episodes that may last days, to several weeks where I feel like somebody is sitting on my chest & I am extremely fatigued..recent exam revealed normal sinus rhythm, & "likely due to brainstem history" by local ER staff. When this happens it is 24/7 & when it goes away it is gone until the next time. Although I do suffer from anxiety & depression, both are well controlled & I am not anxious when this chest pain happens as I know it will eventually go away.
..Although I have a team of great doctors, I need to know if there is anything that can be done to stop all these neuro symptoms from developing &/or continuing. I am in constant pain, go from my chair to my bed, very fatigued, have my cold packs & hot packs plus pain medication & am still in excruitiating pain most of the time.
..THESE ARE MY DAUGHTER'S NEURO THOUGHTS & I AM HER MOTHER SENDING THIS TO YOU TO SEE IF ANYONE OUT THERE WOULD BE ABLE TO HELP IN SOME WAY..THANK YOU.
This discussion is related to condition after craniotomy/spastic.
Member Comments (1)
by squeemy, Jun 21, 2008 09:51AM
To: Doctor's forum
Could you please post this question in the Dr.'s forum. Thanks so much
Post Comment
