Welcome To The Dysautonomia Community!

[halbashes]

Welcome to the Dysautonomia Community!  Dysautonomia, or Autonomic Dysfunction, is a chronic illness that causes frequent malfunctions within the body's Autonomic Nervous System.  The most common diagnosis within this category are Postural Orthostatic Tachycardia Syndrome, and Neurocardiogenic Syncope.

The many varying symptoms of Autonomic Dysfunction can make it very difficult to properly diagnose, treat, and ultimately live with.  This community is a wonderful place to exchange information with others who share the same condition.

Additionally, a link to our health pages can be found at the top right of this page.  In the health pages area, our members are encouraged to read and/or share information pertaining to the diagnosis, and treatment of Dysautonomia.  

Lastly, I'd like to point out the cool new trackers Medhelp has made available to it's members.  You can access these trackers by clicking the “My Medhelp” link above, and then the “Trackers” link.  The blood pressure tracker may be especially useful to members of this community, and has recently been changed to include symptoms/treatments of low blood pressure.

Please feel free to introduce yourself, ask questions, or share answers.  I look forward to meeting you soon!

HalBashes
Community Leader

[psychologystudent800]

Hello halbashes,

I have been going through the forum and I want to thank you for all the work and time you are putting into this.

I know how hard it is sometimes for people with this condition and your help and advice will make a difference for all those suffering.

Also I think we do not thank people enough for their effort..

Keep up the good work.

[PlateletGal]

Hi ! I have CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) and have had POTS along with it. I've been on a treatment that targets pathogens and my blood pressure has started to stabilize and so the POTS is so much better ! I still have some problems at times though and post here to see if I can help anyone with this frustrating condition.

[shelly0721]

I was just diagnosed with autonomic dysfunction yesterday after my old ep could not do eps due to insurance does not cover the hospital that he does it. I was glad that I didn't do the eps. I have IST due to complications of  gastroparesis and side effects of meds that required to control gastroparesis. I also have low blood pressure. My new ep said my system is confuse on how to regulate my heart rate at times and blood pressure. I need to have another event monitor for 30 days. Also he is going to find what meds that+I+can+tolerate+and+won't+cause+gastroparesis+to+flare+up.+He+needs+to+control+heart+rate+and+increase+blood+pressure.+It+will+be+trial+and+error+to+see+if+which+one+I+can+take.+Its+not+so+easy+to+take+meds.+If+I+can't+tolerate+any+meds+then+I+will+consider+picc+again+or+maybe+manage+some+other+way.+This+gastroparesis+started+from+a+virus+and+escolated+to+severe+case+and+permenant+damage,+now+to+autonomic+dysfunction+of+IST.+I+don't+if+this+is+consider+part+of+autonomic+group+but+just+checking.