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Thyroid Disorders Community

This patient support community is for discussions relating to thyroid issues, goiter, Graves disease, Hashimoto's Thyroiditis, Human Growth Hormone (HGH), hyperthyroid, hypothyroid, metabolism, pituitary gland, cancers, thyroiditis, and thyroid Stimulating Hormone (TSH).
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HyperT - RAI questions

by mags59, Jul 04, 2008 04:29PM
I have hyperthyroidism caused by 3 hot toxic nodules.  I am scheduled to have RAI treatment in a couple of weeks.  Right now, I feel so lousy. I'm tired, my legs ache terribly,have tachycardia and I have horrible anxiety.  I feel like I can't even function.  This is especially bad since I live alone and have no one to help me through this. I am allergic to antithyroid meds and beta blocker made me depressed and suicidal.  I was wondering if anyone else has experienced this, and will I feel better after RAI.  I cry all the time and feel like I want to die.
Member Comments (8)

by AR-10, Jul 04, 2008 04:57PM
I told a doctor in the ER one time that I wanted to die.
She just patted me on the shoulder and said "No you don't, or you wouldn't be here".

I have felt like you feel, and I am sorry you are going through this. It will get better. It will take about a month for the RAI to start helping.

Does your Endo know how bad you feel? Another six or eight weeks of this is too much. Especially living on your own. There must be some sort of relief for you. Hopefully the nodules will slow down.

by HyperT77, Jul 04, 2008 05:15PM
You will feel better.  It takes time, but relief is in sight.  Hang in there, and stay on this website.  This is one of the best sites I have found for information and support.

I felt all of those things.  The beta blocker and medication made me feel, not good, for the first week, but after that, I started feeling better.

by mags59, Jul 04, 2008 05:22PM
To: AR-10
Thank you for responding. I really really needed some support right now.  I'm on Ativan for the anxiety, but at this point, it doesn't help all that much, but I certainly don't want to stop taking it.  Unfortunately, there aren't very many Endos in this area, so the ones who are here are very busy.  When I see him again after my uptake scan, I'm going to ask him what else there is for me while the RAI takes effect.  I just feel so hopeless right now; I try to convince myself that it will get better, but some days (like today) are really hard for me to handle. I don't have much family left, and they don't live close to me.  My best friends moved out of state a few months ago, and although we talk on the phone, it's just not the same as having them here with me.  I really appreciate your support and concern and I am so very glad this forum is here for me to vent to.  It's the closest thing to a shoulder to cry on that I have at the moment.

by mags59, Jul 04, 2008 05:24PM
To: HyperT77
Many thanks to you, too.  Talking to someone is really helping me with this; knowing that you all have gone through it and made it out the other side unscathed.  It gives me hope when I feel so down.

Thanks to all of you.

by blksapphire, Jul 05, 2008 12:03AM
I am very sorry to know that you are going through this alone.
I too went through what you are going through and then I found this site.
Visit this site as often as you can.  The people here are great.
They will assist you with all of there knowledge.  If there is isn't anyone to assist,
there is always a shoulder to lean on and an ear to listen.

This to shall pass........   There will be good days and there will be bad days.
My endo put me on atenolol because my heart rate was so high, while
I was going through my hyper mode.

I had hot nodules and then RAI treatment in December.  I still  have my moments, but then I come to this site and see that another person needs our assistance.  We
all need each other.  

So come on aboard the thryoid boat.   We will be here for you.

Take care
Terri

by mags59, Jul 05, 2008 08:19AM
Is it normal to be feeling so incredibly weak?  At first, I was so felt so hyper all the time, and now I feel like it's an effort to move at all.

by ibabug, Jul 08, 2008 10:06AM
Hi Mags-
I too am going through the same thing. Up and down, hot and cold. Hyper then weak. I had RAI last month and am waiting for it to work  In the meantime it is hard to tell what is the meds, what is me and what is my head working overtime. I would love to move on and stop feeling like this. Just keep talking to us....it helps to have people who get it!

Ilene

by mags59, Jul 08, 2008 10:15AM
To: ibabug
Hi Ilene,

Thanks for the support.  It sounds dumb, but in so many ways I can't wait to have the RAI.  The only med I'm on is Ativan (lorazepam) for anxiety.  I'm allergic to antithyroid meds (for some reason I've become drug-sensitive as I've gotten older!).  Thanks so much for responding; it really helps to know I'm not going through this alone.

Maggie
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