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MS or Lupus? Please help.
by Ktry, Jul 13, 2008 11:36AM
I've been having some neurological issues and am seeing two neurologists. Doc #1 says I have MS. Doc #2 has not seen my brain MRI yet, but seems to be leaning towards MS. Doc #2 is sending me for more testing including an EEG (?) and an antiphosplalipid. Doc #1 sent me for all the normal MS mimicking blood tests and all have been normal. Except I have high cholesterol. I'm 31, but it runs in my family on both sides.
I'm experiencing short-term memory loss, depression, tingling in legs, extreme fatigue, vertigo, pins & needles, loss of words, chronic back pain, weakness in legs, etc. Doc #2 found that my right pupil shows optical neuritis & that I have a patch of flesh on my mid-back extending to my side that responds to touch as if I have a lesion on my spinal cord.
I have a history of 1 miscarriage. I was pregnant with twins, and Baby A died at 4 mos in utero. After the birth of Baby B, my OB discovered a huge blood clot in the placenta. Baby B was born with Aplasia Cutis Congenita probably as a result of this bloodclot. Also the placenta was very small. I was gardening & I now have what I think is poison ivy on my face. It doesn't appear to be the typical lupus rash & its very itchy. I have no joint pain. Unfortunately Doc #2 has a busy schedule & cannot see me until October. In the meantime, Doc #1 wants to get me started on an MS drug. What should I do? I cannot wait 3 months to figure out what is wrong with me.
This is what my MRI report reads:
-multiple lesions of high T2 and T2 flair signal intensity in the bilateral periventrical and deep white matter which are suspicious of demyelinating lesions. 1 of these lesions demonstrates minimal enhancement in the right periventrical white matter.
-there are questionable foci of very subtle increased T2 signal intensity at the left posterior pons ans left anterior medulla
- there is a small enhancing developmental venous anomaly at the right frontal lobe.
Given all this information, would you be leaning more towards MS or Lupus (ANS?). Thanks so much.
I'm experiencing short-term memory loss, depression, tingling in legs, extreme fatigue, vertigo, pins & needles, loss of words, chronic back pain, weakness in legs, etc. Doc #2 found that my right pupil shows optical neuritis & that I have a patch of flesh on my mid-back extending to my side that responds to touch as if I have a lesion on my spinal cord.
I have a history of 1 miscarriage. I was pregnant with twins, and Baby A died at 4 mos in utero. After the birth of Baby B, my OB discovered a huge blood clot in the placenta. Baby B was born with Aplasia Cutis Congenita probably as a result of this bloodclot. Also the placenta was very small. I was gardening & I now have what I think is poison ivy on my face. It doesn't appear to be the typical lupus rash & its very itchy. I have no joint pain. Unfortunately Doc #2 has a busy schedule & cannot see me until October. In the meantime, Doc #1 wants to get me started on an MS drug. What should I do? I cannot wait 3 months to figure out what is wrong with me.
This is what my MRI report reads:
-multiple lesions of high T2 and T2 flair signal intensity in the bilateral periventrical and deep white matter which are suspicious of demyelinating lesions. 1 of these lesions demonstrates minimal enhancement in the right periventrical white matter.
-there are questionable foci of very subtle increased T2 signal intensity at the left posterior pons ans left anterior medulla
- there is a small enhancing developmental venous anomaly at the right frontal lobe.
Given all this information, would you be leaning more towards MS or Lupus (ANS?). Thanks so much.
Member Comments (1)
by Ktry, Jul 13, 2008 12:04PM
P.S. I had 2 healthy children before the miscarriage. Also I meant to say Hughe's disease not ANS. Thanks
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