they say its not forever

[dede383]

hi so glad ive found this web page, i thought it was just me,!!!!! have had fibro for mearly two years, have given up the battle within me and accepted its here and isnt going anywhere yet, have had to give up work which inturn has bought its own problems yes money which then causes added stress which is what we are meant to avoid ,.
have had some ok times in the past few years days are bareable, but at night it reminds me i still have it my pain although general its settled in my lower back and hips is this the norm for everyboby?
But good new fellow suffers my gp tells me it wont be forever !!!!!!!
chin up everyone .
De

[Melissa70817]

I have given up hope and do believe this will be forever.  It took many years for me to admit to myself this is something I have, I think to have hope at this point would be depressing.  Over the past 4 years I have tried all meds with no resolution to my pain.  The only thing that works for me is Lortab and Soma but even then I can feel my brain being "tricked" into believing my pain is not as severe.  Antidepressants help if you can find the right one which I have not been able to do or afford.   I hope you can come here and find the answers and help you are looking for.  There is a great group of people who truly understand and will help in any way they can!!!  I would advice to stay out of the Pain Management Forum as they can be critical.

[kitty51]

Pain in the lower back and hips at night is a fibro symtom and sorry to burst your bubble but each specialist and other doctors have said there is no solution for fibro.I have read and researched this for years,and everything i have learned makes this condition so complex.I have spent so much money on different medications and so far it has all been a waste of time,but keep trying in hope that something will work sooner or later.The only thing that did actually work and i had no pain at all was when i was on predinsone for my asthma,i was freed from pain for over 2 months.The down fall of this was when they weaned me off it was so bad i went into a drug induced physicosis and imy mind was bounced around like a ping pong ball.We are all in the same boat maybe we should all live on an island somewhere,no tv,computers,bills,telephones.and no stress or problems.You never know it just might work.No harm in dreaming!!!

[kitonthemoon]

Yes.........I too believe there's hope yet.  We have to be patient with outselves,. the disease., so we won't add more stress which most definately can make our conditon even worse.

I've known people who did get better, although I'm not one of them.  

I'd like to think that without my illnesses, I wouldn't have made so many precious friends online, which in itself is a true blessing.

Have a good and restful night.

Kit

[melo1224]

I also have the pain in my back and hips at night. I wake up and I just have to rotate from side to side due to the hip pains. I do notice they are MUCH better when I can excersise. I was having those pains everynight and when I go walk on the treadmill or really any activity the pains usually go away.
I've had Fibro for about 12 years now. I've have periods of remission I guess you'd say, where things seem to settle down and I feel pretty good, then again periods of increased pains. I hope one day the calm period will last forever. We can always hope and believe that the pain is not forever. I know there's no cure according to the doctors but I believe if we stop hoping for a better future we're just giving up. So keep believing!

[dede383]

thank you for your response , 12 years is a long time!!! its strange dont you think how it becomes a way of life, i must say what upsets me the most is when i am in a more active phase and people ask how i am ,and i say ok thanks BUT last night i was in the most awful pain etc etc , i get the feeling that they think i make it up because im up and about doing, oh and i have makeup on, guess i should look ill, if only they were a fly on the wall, but as always stay positive, ur right about the exersise, i do try and walk the dogs most days , thanks for your reply and keep well x

[fibromama]

I have had pain since i was little and was always told it was growing pains until I was diagnosed at 9 with Cluster migraines and chronic pain,,the chronic pain ended up having a name and found out 5yrs ago (Fibro),,,I have had no relief until currently taking a new drug Suboxone it helps greatly but still am really sick and foggy cant walk or stand long have bad anxiety and depression and the list goes on.  I wish for the day I can be free of all this non sense.  I hope your doc was right,,Ill be waiting for that day

you take care an have a good day