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This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
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why do docters tell me i have this but they have only guessed

by jaye1988, Jul 18, 2008 01:43PM
I'm 20 years old, i have suffered with muscular pain since i was 15. Ive had blood test after blood test and the doctors have guessed that its fibromyalgia. I'm feed up with been given tablet after tablet.I'm young and just completed college as a beauty therapist and im worried i wont be able to carry on and have a carrier and be able to have a normal life. I have just resently found out that my granddad has just been diagnosed with chronic neurogenic atrophy is it possible that i have inherited it?
Would i have to have a biopsy?
I'm i young to have chronic muscular pain that i have?
Could i pass my pain on to my children when i start a family?


This discussion is related to Chronic Neurogenic Atrophy.
Member Comments (2)

by medchick0523, Jul 18, 2008 09:14PM
To: jaye1988
Diagnosing FM is a diagnosis of exclusion, there is no blood test that diagnoses FM, no MRI/CT Scan, symptoms of FM are similiar to other medical disorders, so once these are excluded FM is left. Do you have the 'tender points' associated with FM? (here is a website that shows where on the body they are if you are unfamiliar : http://www.fibromyalgia-symptoms.org/fibromyalgia_diagnosis.html )

Have you ever had an EMG? I don't know much about Chronic Neurogenic Atrophy, but you probably would need a biopsy to confirm that diagnosis and it is more than muscular pain, the muscles actually waste away.

No, you're not too young! When I was 19, I was diagnosed with a chronic neurological disorder. I had to take a leave from school, and I was worried I wasn't going to be able to have a normal life. You learn how to cope, how to listen to your body, and what it takes to get things done. It's unknown whether my condition is genetic, but I decided if I have children, and one of them has the disorder we'll deal with it as it comes, I've been through it and I'll do what I can to get him/her through it too.

Best Wishes.

by jaye1988, Jul 19, 2008 03:48PM
To: medchick0523
Thank you for letting me know im not to young i feel better now. I feel like a freak of nature still. ive had a brain scan thats all because when i first started getting the muscle pain i used to pass out and fit up to ten times a day. The doctors checked me out for epilepsy and i don't have that so i still got no answers again. I'm fine now i haven't passed out since feb this year. I'm seeing my doctor on Wednesday so im going to push harder now for answers i sick of being left in the dark.
I have done the FM tender point test and i have 10 of the points.
I hope your children don't get what you have, you sound to me a very strong person and i want to make sure i am to.

Best Wishes
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