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MedHelp Member's Question

Hip pain while laying down trying to sleep

by fibromama, Jul 18, 2008 01:52PM
Has anyone else ever experienced this horrid problem.  I have Fibro was diagnosed 5yrs ago but have had pain since a kid.  Some night when trying to sleep I will get this horrid burning dull ache in the hip im not laying on so Ill switch to the other side and the other hip will start to hurt,,eventually they both start to hurt and I end up in odd positions trying to get comfortable.  Also when I get this I will have cold sweats Ill be really cold but sweaty.  Im wondering if it could be the weather change since it was really cold in my house this morning or what the deal is.  Has anyone else had this problem.  If so I would love to hear about it,,what it could be and how you deal with it.  Any suggestions or feedback would be greatly appreciated.  Thanks Rae
Member Comments (22)

by Melissa70817, Jul 18, 2008 02:19PM
Hey girl....yes, this happens to me also, sometimes I try to roll over and I can feel the tendons, they feel like they are scraping against my hip bone which stops me in my tracks and I have to catch my breath before I can continue to roll over.  I really thought that once I lost weight my pain would decrease, that is not so.  The pain I have in my hips feels like someone took them out of socket, added sand to the ball joints and put them back into place with fire added to it.  I have also been breaking out in cold sweats but I haven't paid attention to what pain it might be associated with it.  When I get my dizzy spells I sweat so bad though.  Like I said, I can be sitting down in the a/c and they happen.  
Sorry I don't have any answers on how I deal with it.  I just take it in stride, or try to.  

by fibromama, Jul 18, 2008 02:41PM
Its amazing how are symtoms are so much the same.  The description of the hip pain is exact,,,its so annoying.  

by Melissa70817, Jul 18, 2008 02:49PM
Yes it is....have you had the skin burning yet?  That was one of my first symptoms.  I haven't had it in a couple of years.  It was so bad that when I would go to my dr. appt. my doctor could not touch my lower back to put the tape measure on me.  I'm so glad that symptom is gone. The hips were my second symptom and it has NEVER gone away or let up.  They constantly hurt.  Have you had your bones hurt yet?  My leg bones hurt so bad sometimes it feels like they are breaking.  I can't cross my legs, to put any kind of pressure on my shin bone feels like they are going to snap any minute.

by junie37, Jul 18, 2008 03:21PM
To: Fibromama/ Hip Pain
i have this also, started  in the last year.  I also have Osteoprosis in the Left hip but this in mostly in the right hip. It seems to be in the joint ( side ) and also have Knee pain, off and on. End up sleeping on the Left hip because being on my back is not comfortable either.  
                                                         PJ

by fibromama, Jul 18, 2008 03:24PM
Oh yeah my skin burns like crazy if I barely rub my skin especially on the back of my arms I get this horrible feeling,,I always tell my husband "dont touch my arm like that my skin hurts",,he thinks its all in my head,,,,,my bones are so sore really bad in my legs and my forearms,,,,I also have severe neck pain and muscle tightness it never goes away no matter what I do,,I could be dosed with all the Dilaudid in the world it still wouldnt work.  The Sub so far is been really good with my pain but what the hell can I do about the other sypmtoms,,,the "lazy feeling syndrome" and the foggy,hazy brain and feeling like Im always in slow motion.  when does this all stop how do I get rid of it.

by mranxietyoftheeast, Jul 18, 2008 05:03PM
To: Fibromama
After years of doctor exams across the country (including John Hopkins, NY HSS, Columbia / Cornell, Mass Gen) and many many many blood tests, x-rays, bone scans, MRIs, lip biopsy, synovial fluid biopsy, etc.. etc..    I have been diagnosed w/ Reiters Syndrome, Fibro and Chronic Fatigue.   My ID doctor has me taking Famvir (an antiviral drug) to work against Epstein Barr Virus.   EBV could be responsible for my fatigue and Fibro.    EBV antibiodies stay w/ you for live.  However, there are different IgG measurements which will show if the virus is active or latent.   Might be worth looking into?   Just a thought.

Good luck.

by mranxietyoftheeast, Jul 18, 2008 05:05PM
To: Fibromama
Also -- I forgot to mention -- I just started taking Lyrica for Fibro.  The FDA approved the use of Lyrica for Fibro late last year.   Also take Tramadol / Ultram for pain.    Xanax to sleep at night.    Good luck.

by Shanannagins, Jul 18, 2008 07:49PM
To: fibromama
I completely understand what you're talking about.  I have the hip pain also but I can hardly open a water bottle without it feeling like my skin is being ripped off.  My solution is to use one of those jar opener thingies or just have someone else open it for me.
As far as your leg pain...I use a topical product called Sombra.  It has no capsasum (I know I am spelling that wrong) in it which is great since I am allergic.  It works wonderfully in conjunction with my pain meds.  I don't use it on the burning spots.  I only use it where I have joint/bone/muscle pain.  I think you can find it in some health food stores but they have a website also.  It is http://www.ithacasports.com/sombra.html
I hope you feel better!

by fibromama, Jul 18, 2008 09:32PM
To: all who responded back
thank you for the responses it is a big help knowing everyone elses helping mechanisms.  I know it could just be the Fibro kicking it when its cold,,like it was this morning in my house especially after being so hot the days before.  

The capsacian cream (i know im spelling wrong too) was sooo wonderful in bringing down my muscle spams but ended up waking me up in the middle of the night the first night I put it on in agony,,I felt like my neck and back was on fire,,,I had to scrub it off with a washcloth full of soap.  Although it worked wonderful for my grandmas arthritic hands.

I have been taking the Lyrica for over a year now off anf on because my INS wont pay for it,,so my Doc gives me samples as he has them which is horrible becasue I dont want to take them and then be off of them,,,so this last visit I told him I would just wait and see if my INS accepts payment for me to have the script,,I also just startes taking Suboxone which has been so far the best thing that has helped any of my pain,,but Im only taking that to withdrawal off of the horrid Methadone I was taking for pain.  

With pain