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Epilepsy Community

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unknown symptoms

by Honey23, Jul 19, 2008 10:39PM
Ok so heres the short summary, its been a long road trying to figure out whats going on with me , I've had to switch to 2 neurologists , and now that i've moved back to my home town , I no longer have a neurologists at the moment, I was sent to a neurologist for possible epilepsy and through a few test never found anything but was still diagnosed and medicated , that then switched me off the medicine by my request and tried a medicine for anxiety thinking that anxiety was causing my seizures , for the past year off and on  I have been having a tingling and numbness filling in my head , it feels almost like my brain and in my face. Its makes me very weak feeling. I was wondering if this symptom has been heard of and what could be causing this?  
Member Comments (3)

by dualdis3, Jul 20, 2008 12:12PM
To: Honey23
It still sounds like some type of seizure disorder to me.  Look at the evidence.  Sometimes every neurologist disagree with each others diagnoses. This in tern is not good for you and your situation.  I am a 54 yr old male and I was diagnosed by a common doctor of having Generalized Anxiety Disorder way back in 1975 so, they put me on Anxiety medications but, the seizures still came along just the same.  So, after months of treatments they took me off of Anxiety meds forever and just let me have episode after episode of seizures and just plain suffer.  Ten years later in 1985, I went to the Western Neurology Group for special test for Seizures and it came back possitive for Complex Partial Seizures.  Complex Partial Seizures and Simply Partial Seizures can act like the Anxiety Disorder as well.  So, if a neurologist does not do special test he or she will simply diagnose it as comon Anxiety Disorder instead of what it really is, Epilepsy.

by Honey23, Jul 20, 2008 02:20PM
To: dualdis3
Thank you so much for replying, yeah the neurologist did three tests , a EEG , a sleep deprived EEG which they told me is only 50% accurate and an MRI after that from my anxiety spells we thought it was just anxiety so i've been put on celexa. Celexa worked a little for my anxiety but I still had a siezure. The large siezures i've had are usually brought on by me having anxiety its how it starts , their like blackouts , my husband said my eyes roll back , my jaw and body lock up and I stop breathing for a short time. Its kind of wierd , and I noticed that when the big ones happen its only when I've gone out drinking and gotten stressed out. I dont drink but on occasion , so those siezures dont happen often. I originally sought out a neurologist after my first big expeirence with these siezures which ended up happening multiple times throughout that night , and for the first time experienced not recognizing anyone around me. When every these episodes happen I can hear everyone around me but i can not respond , is that normal in siezures? thank you so much for responding to me , its been a little frustrating not knowing whats going on, and getting medical care has been stressful my husbands military so I have to go through like 6 doctors to get a neurology referral again. Thanks again

by seeksolice, Jul 20, 2008 05:40PM
The anxiety you experience right before a seizure, this could possibly be an aura. Everyones aura's are different; some feel very tired, disoriented, while others feel very clumsy and light headed.  Either way, the anxiety is your body's way of telling you that a seizure is coming. Thank god for the warnings our bodies give us.

You mentioned having seizures when stressed or after drinking- this is VERY common in epilepsy.  Those are two triggers for nearly all epileptics in my experience.

Good luck.
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