This patient support community is for discussions relating to angina, angioplasty, arrhythmia, bypass surgery, cardiomyopathy, coronary artery disease, defibrillator, heart attack, heart disease, high blood pressure, mitral valve, pacemaker, PAD, stenosis, and stress tests.
I can't offer much information, but I do know that you may also find answers and support on the Dysautonomia forum. Here's the link in case you're interested. The Community Leader is "Halbashes" and she understands a lot about this type of problem.
http://www.medhelp.org/forums/show/266