drink/food intake

[miro51]

hi,

As a Celiac..can I drink any kind of juice?  Also, is honey ok to use? What about the frozen all natural fish fillet and frozen all natural raw shrimps..are those ok to be eaten?

I am trying my best to eat everything gluten free but somehow, I still get the muscle weakness and a little bit of nausea when I eat certain foods.  Now I get unbalanced when I make sudden movements and when am standing still or sitting leaning forwards.

Anyone who has any idea what am talking about please let me know...Thanks ever so much

[beentrying2quit]

Your journey is just beginning.  The problem with having Celiac Disease or Gluten Intollerance is gluten is in EVERYTHING!  Food preservatives, bread, ketchup, salad dressing, etc. and everyone will react differently.  While you may be able to tollerate some preservatives in chineese food I cant even walk by a chineese restaurant without reacting.

Trial and error is the order of the day for celiac sufferers.  Keep you diet as plain as possible.  ANything frozen or processed foods will contain some kind of food preservative which more than likely contain some kind of gluten and while the product may not list "gluten" as an ingrediant some companies have some kind of fancy scientific name that we do not understand that is listed.

Fresh fruits, vegetables, all fresh meat is good.  There is a great bread called "glutino" that you can order off the internet.  The cinamon-raisin bread is fantastic.  The regular bread is great toasted.  

I too am just beginning my journey in finding out what I can/can't tollerate.  I notice that when I eat the way I';m supposed to I feel great.  If I eat a hamburger or some pasta..I pay the price for a few days.  I'm getting older now and am just not wiling to go through that fight anymore.  Let me know how things go for you and if I can help in any other way.

[beentrying2quit]

A few more things....Dizzyness is a common side effect of celiac/gluten intollerance.  Muscle weakness, body aches, joint pain and anxiety are also symptoms.  I find that It takes 2-3 days of a gluten free diet for the symptoms to disappear but we are all different.  I've spent thousands of dollars going to the doctor trying to figure out whay my problem is and each time they give me the "deer in the headlights' Look...they dont have a clue...I diagnosed myself with this celiac/gluten problem.

Lactose Intollerance also goes along with celiac.  If you notice the above sypmtoms after eating any kind of dairy good chances are you too are lactose intollerant.  THIS ***** but can be overcome.  

Eating out at restaurants get really difficult as well.  Grilled chicken salad is about the extent of my menu selections...maybe I'll get a baked potatoe if they have one.

GOOD LUCK!

[miro51]

I hear exactly what you are saying..whenever I eat something that affects my stomach..it takes me a few days to get over it and I try explaining this to my doctors and others but they don't seem to understand because am not complaining of pain but just a feeling of unwell.  My family sometimes tell me that maybe am thinking of it too much so try to not think and am like it is not my mind it is my digestive system and what goes in.

It has taken me over twelve years and I know which foods would give me pain so I totally eliminated those from my diet but seeing that i just found out about the Celiac and Gluten Free Diet, am still learning what to eat.  

It is a long road..with ok days and days when it is like taking so many steps backwards that I wonder if it has anything to do with my diet.

I was checked for neuropathy and everything was fine...every tests that I take comes up normal..lol but yet still I feel lousy just like that.  

I google this Dr. and am going to try getting an appointment with him..I have to write an essay and mail to him before getting to schedule an appointment(Dr.Thomas Bolte).

Keep writing and giving me information on the Celiac and Gluten.

Thanks so much

[miro51]

does anyone get fed up or just plain frustrated when one day everything is great, no stomach issues and the next you feel so sick and you have no idea what you may have eaten that would cause you to feel so sick?

I pray every day that the good Lord would help me find exactly what is wrong and what makes me feel so sick with my stomach.

Immediately upon feeling sick..I go to the bathroom over and over but yet still not one of the doctors I have been to so far can figure out what's wrong with me.

I did the gene testing and when the results came in my PC called me in to discuss the results...he told me that I have a trace of Celiac but when I saw the report...it is the same as the other blood work that I did for Celiac.  I called the Lab and they acknowledged that they did not do a complete gene testing so I had to go back for them to draw more blood...I called my doctor's office and he said that the results were the same..am waiting for him to mail it to me....so so frustrated right now.

I am going to see a new GI doctor next Wednesday...hopefully he might think outside the box.

Just needed to vent.