Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
telephofee Female, 29 years Kailua - HI Member since Mar 2008
, Jul 27, 2008 04:45AM
I'm with Droopy56. I have it, but it took over 2 years and for things to get worse to finally diagnose it. Other things had to be ruled out. I fit the criteria and tender points, etc. I also have IC, which can tie in with it. Hope you are doing o.k. Not fun to not feel well.
In my opinion, the best physician is one who keeps up-to-date on the latest research and knows about the alternative methods that the fibro experts are using to treat the condition. Co-cure.org is one of the websites that lists these physicians who are so interested in helping fibro patientsKidney diet - dialysis patients.
Mood: PlateletGal is zapping mycoplasmas ! Journal Entry: "Just about every segment of the medical c..." [Read]
, Jul 27, 2008 09:47AM
I forgot to add... my rheumatologist told me that she did not believe in CFSChronic fatigue syndrome or fibromyalgiaFibromyalgia. I found out later that their attending physician was telling all of the residents in rheum that these illnesses did not exist.
I know that physical stress, such as a car accident, can make fibro worse. However, there is no evidence that fibromyalgia is caused by stress. I would consider asking your physician for the research to back up her claims.
Its funny because a lot of money was allocated towards research to find a link between stress and CFS. And yet no link could be found ! What they suspect is pathogens... the same probable cause for autoimmune "syndromes" such as Sjogren's Syndrome and Guillian Barre Syndrome.
I was jet skiing and we turned, when we turned I felt the tendon on my shoulder slide from one side to the other. There was no pain at all until about 2 days later, I couldn't lift my arm to bring my hand to my lips. That was the first of my pain. I wasn't injured, no surgery, no nothing, just major stress. My pain never went away, instead it started spreading. To this day I have not gone a day without pain since my shoulder first started hurting.
When I had my last child, I had a tubal and the wound from that surgery got infected. I had a bad pregnancy, very stressful, almost losing my son, went into labor from the time I was 5 1/2 months pregnant until I finally delivered and so on. I was put on so many meds to stop my labor. I just wonder if that experience along with the surgery for my tubal and the infection had something to do with it. Since I had my son I have had chronic vaginal bacterial infections. I believe this was the first sign of FM. I guess we will just have to continue guessing as to what the cause might be. We know what the effects are, don't we......
Not all rheumatologists.. LOL! I know rheumatologists who are very upset that they are getting the fibromyalgia patients because they feel that neurologists should be seeing these patients. Actually... they have a point because fibromyalgia is a neurological / immune disorder.
In my opinion, the best physician is one who keeps up-to-date on the latest research and knows about the alternative methods that the fibro experts are using to treat the condition. Co-cure.org is one of the websites that lists these physicians who are so interested in helping fibro patients.
I was just wondering how your protocol was going and if you see any improvements. thanks
Its going great... thanks for asking. Since I've been on this "pathogen killing" treatment.. I've made so much progress. I have more energy on my good days, my adrenals are functioning better, my allergies are soooo much better and my intolerance to gluten is GONE. I also rarely have tachycardia anymore and my blood pressure is more stable. I also have a mole on my left food that is disappearing ! Amazing... considering that I've had it there since I was a child. From what I'm reading and understanding... this treatment should be lowering my risk for cancer as well. This is what healing is... not taking drugs