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Thyroid Disorders Community

This patient support community is for discussions relating to thyroid issues, goiter, Graves disease, Hashimoto's Thyroiditis, Human Growth Hormone (HGH), hyperthyroid, hypothyroid, metabolism, pituitary gland, cancers, thyroiditis, and thyroid Stimulating Hormone (TSH).
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Jules is an inspiration!

by mommy2two2008, Jul 25, 2008 09:29AM
So I was so impressed by Jules' ability to get copies of her testing (and ability to post them) that I called the imaging center that did my CT and Thyroid US and GUESS WHAT.  I can have a copy on disc!!!!!  HaPpY DaNcE here!  Told them that I was going to see my ENT and I wanted him to SEE the films b/c we already had copies of the rusults.  She said she is pretty sure my doc takes them on disc.  I can pick up a copy any time Wednesday, before my appointment (9:00 a.m.) because the imaging ctr opens at 6 a.m.

Yeah!  Cool, now I CAN SEE what they saw and ask questions accordingly, OH - AND I'LL MAKE A COPY OF THE DISC FOR MYSELF OF COURSE!!!!
Member Comments (4)

by AR-10, Jul 25, 2008 12:48PM
I wonder if you can run them on your computer?
That would be way cool!

I'd like to have a good look at my CT scans.
"OK, I think this is my adrenals glands...and there goes my spleen! Anybody want some popcorn?" LOL!!

Good for you, mommy2two! :o)

I may ask about mine.

by mommy2two2008, Jul 25, 2008 01:38PM
ROFLMAO AR!!!! You are way too cool!

by Jules77733, Jul 25, 2008 02:13PM
Awww shucks, thanks for the compliment mommy2two2008. :) I used to think I couldn't get copies of medical records because that would lead to patients like me trying to diagnose themselves...but I'm at the point where I just say "please hand them over," and if that doesn't work, I say "hand them over." lol I have a right to my records, darnit!

AR-10--yes, you can run them on your computer! The hospital I have my testing/imaging done at has GE (General Electric) medical imaging software that automatically runs when you load the disk in your computer. It's very convenient and as a result, I have a couple of RAIU scan images, about 100 ultrasound images, and a few hundred MRI images. As a matter of fact, if I didn't request my MRI images, I never would've seen the report the radiologist wrote for my MRI...where he points out that I have a 1.3cm pineal tumor growing on my pineal gland. My doctor ignored this and didn't bother to tell me that it existed, even after I spoke with her office several times about these results plus labwork. This just goes to show you that doctors don't necessarily tell you everything, and while they might selectively tell you certain things but not other things, for your own good (since a lot of people mind tend to worry after hearing there's a growth that's larger than the gland itself in their brain...), in my case, this is rather significant due to symptoms I've been experiencing over the last few months and the fact that it's larger than 1cm. Definitely get yours, and post the CT scans if you don't mind--there are some people on here who might be able to pick up on things the MD didn't.........MDs are people, too, and they can make mistakes and they have limited knowledge on topics, whether it's due to science not providing an answer yet or the doctor not being very familiar with that particular subject area (haha that was a bit of a soliloquy...sorry, not directed toward you!).

To everyone--get copies of EVERYTHING and don't let any doctor/nurse/medical staff tell you that you are not allowed to see them! You're entitled to the records; it's your body and you (or your insurance) paid for those tests. It's always good to have copies on hand even if you don't see any immediate need for them. It can't hurt, and most places will give you copies of things (and disks with images on them) for free. :)

by Jules77733, Jul 25, 2008 02:18PM
To: mommy2two2008
If it's easier for you, I would recommend holding onto the disk you get that contains all your images...perhaps lend it to your endo/doc's office to view them, but let them do the legwork of making a copy or putting the images into their system. I guess I'm looking at it like this: I have a few disks with images on them, but I'll lend them to whichever doctors I go to (and ensure that they're returned to me), just like a hospital file room will lend the actual film to different offices for viewing, but expect them to be returned (like x-ray films, for example).

But whatever works for you...:) I just don't know how great the quality will be if you are trying to pull images off of a burned CD, and then reburning them onto another CD...you could always just leave them on your computer, but that would be bad if the hard-drive ever fails.

Maybe I'm just really possessive of my images because they're actually pretty cool looking lol In any event, pass the popcorn, AR-10; I'm starving again!
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