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Mine is very low also. I also have a lot of neurological problems. I was hospitalized last week for a couple days and given IV steroids. It helped a lot !
vallieanne Female Westchester - NY Member since Apr 2008
Mood: vallieanne is feeling a little stronger every day. These herons are for you Donna. Journal Entry: "To All :
I decided to post this in a jou..." [Read]
is feeling a little stronger every day. These herons ar...
SharJ Female, 54 years San Diego - CA Member since Jun 2008
Mood: SharJ now dealing with a broken right foot, off my feet 6 to 8 weeks. Feeling a little depressed, it's like what else? Journal Entry: "I have spent the day with doctors because..." [Read]
Cath278 Female, 47 years Co. Cork. - Ireland Member since Jan 2008
Mood: Cath278 Finally getting some where! Mood is on the up and up again. Welcome back me! Journal Entry: "To all my friends in the U.S.A. We rememb..." [Read]
ticked Female, 31 years Mississauga - ON Member since May 2006
Mood: ticked done with all these hormones.... Wish I was a man!!! man their lives are easy arent they??? Journal Entry: "I dont know what the heck I was thinking ..." [Read]
Your post is interesting. The reason why I say that is because the protocol I was originally on was the Marshall Protocol. Dr. Marshall was told that he had only so many months to live (he was diagnosed with sarcoidosis) and he saved his life with his protocol. If I remember right, he discovered that the same pathogens involved with CFS were involved with sarcoidosis... and other illnesses as well. There are different sub-species of mycoplasmas. He's currently treating MS patients, lupus patients, sarcoidosis, Sjogren's, many CFS and fibro patients. And he's having success. I switched to a protocol that does the same thing, but without the antibiotics. And I'm still making progress, but it takes time.
Let me know if you would like some helpful links on this.
My doctor said it is common but I'm not sure if I believe him. I guess I'm losing faith in him.
Thank you for the response. Yes! I would love that information. went to the neuro yesterday and he wants me to have a LP. Seems so silly because having the Sarcoidosis there are going to be o-bands in the spinal fluid. And....that's what he is looking for O-Bands to dx w/ MS. Makes no sense to me.
Melissa;
I know what you mean about losing faith in the doctors. Been there and still there!
~T