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Fibromyalgia / CFS Community

This patient support community is for discussions relating to fibromyalgia, Chronic Fatigue Syndrome (CFS), and pain management.
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Low B/P...

by tonyad, Jul 25, 2008 11:54PM
I have read through a few of the post and noticed that several have low blood prssure.
With that being said, is that a common sx w/ fibro anf chronic fatigue syndrome?

Mine is very low also. I also have a lot of neurological problems. I was hospitalized last week for a couple days and given IV steroids. It helped a lot !

My dx thus far is;
Fibromyalgia
Idiopathic gastro paresis
Sarcoidosis
"probable MS" ( whatever that means)
**I do have several lesions on brain that are not ischemic related but possible demyl disease**

I think that I may have Chronic fatigue syndrome from what I have been readin. That could also explain the brain lesions right?

~Tonya
Member Comments (3)

by PlateletGal, Jul 26, 2008 12:24AM
To: Tonya

Your post is interesting. The reason why I say that is because the protocol I was originally on was the Marshall Protocol. Dr. Marshall was told that he had only so many months to live (he was diagnosed with sarcoidosis) and he saved his life with his protocol. If I remember right, he discovered that the same pathogens involved with CFS were involved with sarcoidosis... and other illnesses as well. There are different sub-species of mycoplasmas. He's currently treating MS patients, lupus patients, sarcoidosis, Sjogren's, many CFS and fibro patients. And he's having success. I switched to a protocol that does the same thing, but without the antibiotics. And I'm still making progress, but it takes time.

Let me know if you would like some helpful links on this.

by Melissa70817, Jul 26, 2008 05:24AM
My BP only goes down when I stand or sit....I'm glad to know what it is now though!!!

My doctor said it is common but I'm not sure if I believe him.  I guess I'm losing faith in him.

by tonyad, Jul 26, 2008 11:19PM
platelet;
Thank you for the response. Yes! I would love that information. went to the neuro yesterday and he wants me to have a LP. Seems so silly because having the Sarcoidosis there are going to be o-bands in the spinal fluid. And....that's what he is looking for O-Bands to dx w/ MS. Makes no sense to me.

Melissa;
I know what you mean about losing faith in the doctors. Been there and still there!

~T
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