My dermatologist told me I don't have lymphoma. From what you're saying, he probably wants to make sure what I have indeed is a PLC by follow up appointments? Is thislymphoma of the skin? When he says lymphoma is he talking about lymphoma in general or just lymphoma of the skin? He also mentioned that he would check my nodes in my neck as well. If it does turn out to be lymphoma of the skin in future, does this mean it is t cell? I'm just worried right now about 2 issues.
1) when he says lymphoma is he just talking about the skin? or other parts of body
2) could i have lymphoma now but it is not clearly diagnosed due to the similarities of lymphomatoid papules? Is this Cutaneous T cell lymphoma (CTCL) what we are talking about? I had read a lot about this prior to being diagnosed with Pityriasis Rosea initially because my rashes looked very similar to of CTCL. It is pretty bad as it can spread to blood, organs etc. and not be limited to skin only. Should I get a second opinion?
I had a friend with CTCL an older friend and when she had seen me with my first break out in the initial phases with the larger patch etc, and the way I described to her how it all starts and the different phases it goes through especially the larger patches, she kept saying it sounds and looks exactly like what she had but that she hopes its not the same. She also added her diagnosis took about 10 years as CTCL.
Thank you very much for responding.
Best Regards.
Hi. Pityriasis Lichenoides Chronica (PLC) has been reported to develop into cutaneous lymphoma in less than 2% of cases. However, it seems that some of these reports of malignant transformation by PLC are actually misdiagnosed cases of lymphomatoid papules and not PLC. PLC has some histologic features (characteristics of the tissue when seen under the microscope) which are very similar to that of cutaneous lymphoma so confusion may be made in identifying these two conditions. Your dermatologist is just making sure that what you actually have is PLC and not lymphoma, hence the need for follow up consults.