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279234 tn?1363105249

Non Specific Brain Lesions/ UBOs

Are non specific brain lesions the same as UBOs? Does these lesions need to change before they can say what type of lesions they are and take them into account?

I'm trying to get my "ducks in a row" to figure this out before I go to my upcoming appointment with my neurologist. The radiologist report from several MRIs say that the lesions in my brain are possibly early demyelinating disease versus ischemic but most of the neuros I've seen all say that the brain lesions are non specific. I'm not clear on the meaning of non specific or whether a neuro can eventually use them as evidence as a disease process occurring. I do however have a lesion that showed up in my spine so they can't discount that.

The big difference this year compared to last year, is that I have a new level of normal. My normal is still feeling really bad but I have days were I'm a lot worse. I think I just came out of something because my muscle spasm were out of control for a week. Even the Baclofen didn't help. I would start out the day feeling bad but tolerable but by the end of the day I was so cramped up with the spasms I couldn't move. My hubby kept trying to rub my muscles but nothing would make it stop. The last time I felt this bad was a week before school started (back in late Aug.).

Thank God it's only been lasting for a week or so and I can just return to feeling bad, not worse. I have noticed one thing. When I do get these episodes they seem to come on, peak as far as pain, and slowly go away. Meaning, I can feel the change coming and eventually my whole left side gets hit. I'll be in extreme pain from the spasms for days but slowly start to feel not as bad. My right side got hit a little this time but not nearly as bad as the left. Does that sound like a flare? I'm just hoping for a DX soon so I can stop this madness but I don't know if I have enough evidence to DX.

I hope all is well with everybody. Any insight would be greatly appreciated as always.
{{{HUGS}}}
3 Responses
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279234 tn?1363105249
Well I hope we start getting some answers soon because this is ridiculous. I don't usually get down about it until I get the worse symptoms. Going from bad to worse just really knocks me emotionally (especially when the doctors can't figure it out).
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Avatar universal
We should have posted together since or topics are nearly the same and we did them at the same time!

:-)

Richard
OperaMBA
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293157 tn?1285873439
this sounds so much like the pains I get on my left side (leg, foot, arm)... I will have days where I have my husband massage my leg and it's worse in the evening or after I've gone shopping or walked for abit.

then I will have days that could be weeks, of weakness and unsteadiness on my left leg and arm... and the pain is tolerable...but then it comes back with the cramping and horrible pain after awhile..??  they still have not Dx me...so sorry I can't help...but the MS specialist is testing me and looking, she said somethings not right??

so, hang in there..your not alone on this...

hugs
wobbly
undx
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