There is a neuro-endocrinologist I think you should see in Oregon. http://www.ohsupituitary.com/patients/tumor.asp OSHU Pituitary facility. I wrote to this Dr. and she also gave me a recommendation to the Cleveland Clinic in Ohio since I live in Ohio.
Is that CM or MM? I tell you what I tell everyone - find another doctor!
Have they only been testing prolactin? Sounds like you have other hormonal issues going on with bone issues so you need more extensive testing.
Find a neuro-endocrinologist and a neuro-opthomologist and find them now!
Since you have your records, what hormones were tested and what are the results - and why are they waiting until your tumor is huge?