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Alternative Treatment

by roof, Feb 27, 2002 12:00AM
Been watching and reading from this board for two years so I fill like I know some of you pretty good.

Would like some comment about this alternative treatment that I am taking.

A short history of my hep C

RNA,PCR quant before starting my first go around with treatment three shots a week pulse the pills was 16694500 count

Liver biopsy.  Chronic hepatitis with moderate periportal ( hepatitis grade 2) with bridging fibrosis and early architectural distortion (fibrosis stage 2-3).  Concomitant moderate steatosis.

Iron--Iron serum 345 h  saturation 97 h

Five months later rna, pcr quant 109000

Seventh month second biopsy to find out if I had hemochromatosis dna probe.  This showed that I did not have hemochromatosis

Stayed on meds.  rna,pcr quant went up 364000. Live biopsy stayed the same.

Stop meds at the end of the 12th month. Did not clear hep C Started phlebotomy to lower iron. Iron is now in the good range.

The doctor that was doing the phlebotomy did a RNA,PCR quant on me.  After being off of the med for 6 months the count was only up to 602000 he and I were very surprised that it was that low should have been in the millions. Because of being so sick from the meds it has taken seven months for my body to heal. I have been afraid to take the peg. He wanted me to try hebal meds from this doctor clince in californa after 1 1/2 months on this my count is now down to 572000 not down much put down and I fill fine. Going to stay on them for three more months and see,  ANY COMMENTS.

Member Comments

by resonator, Dec 26, 2007 01:02PM
To: roof
I'm thinking of doing phlebotomy treatments 1st before any hepc drug treatment. How are you doing and do you think that it's a better option to lower iron levels 1st? I hope you are doing well.

by Upbeat, Dec 26, 2007 02:17PM
To: roof
How are they doing this?  Do they treat your blood and give it back to you or do you receive fresh blood?
                                                                                                                                         Ron

by resonator, Dec 26, 2007 08:18PM
To: upbeat
No Its an old method. They recommend people with high iron levels (iron toxicity)to donate blood every 2 weeks thus reducing your iron levels. Because I have hep c I can't donate blood so it has to be done at the hospital through a doctors referral. There is this link between high  iron levels and high enzyme levels so I'm hoping I can get the enzyme levels this way and try to put off this drug treatments that I'm very leary of. The trouble as always is getting the doctors to look outside the box. I got the virus over 30 yrs. ago and have known about it for 10 yrs. By eating better vitamins and not drinking any alcohol I kept my enzyme levels low but the last year they've gotten away on me. I'm trying to decide my next move and am scheduled to start interferon treatment Jan.15 but think I'm going to try phlebotomy 1st. Hope the doctors don't take it personal but I don't trust them. I just found this sight and want to see how other people are treating this.How are you treating it?
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